►
From YouTube: Celebrate Life: Josh Beaupre
Description
From Gary De Carolis:
5 words that describe Josh: Caring/loving, empathetic, positive, entertaining/musical, outgoing.
Josh's Bio: I’m 30 years old. I have Williams Syndrome. I love music and entertaining people. I like to travel (but don’t get to travel much due to the cost). I participate in Special Olympics year round. My favorite sports are cross country skiing, bowling, bocce ball, swimming, and track & field. I like to spread joy and positivity to all.
1/20/2023
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A
Welcome
to
another
show
of
Celebrate
life,
my
name
is
Gary
decarlis
and
I'll
be
your
host
today
again.
The
inspiration
for
the
show,
of
course,
is
all
about
the
present.
It's
all
about
aiding
folks
in
Vermont
and
some
from
outside
Vermont
who
are
living
life
to
their
fullest
I,
like
many
of
you,
I've
read
many
an
obituary
over
the
years
and
wish
that
I
had
met
that
person
while
they
were
alive
well,
this
show
is
dedicated
to
do
just
that.
Meet
wonderful
people
who
are
very
much
in
the
the
fullest
of
their
life
today.
A
So
you
have
a
chance
to
meet
them
under,
learn
from
them
and
even
ask
them
questions.
If
you
do
have
any
questions
for
our
guests,
please
write
me
at
Celebrate,
Life,
zero,
seven,
four,
seven,
gmail.com
and
I'll
make
sure
those
questions
are
got
to
the
Hope
gotten
to
the
host
and
we'll
get
back
to
you
I'm,
a
strong
believer
that
everybody
has
a
story
to
tell-
and
this
show
is
about
telling
those
stories
so
that
we
all
can
benefit
from
people's
lives.
So
without
further
Ado.
A
B
B
That
randomly
occurs
during
development
of
the
free
stuff
yes
and
occurs
on
chromosome
seven.
There
are
only
about
25
genes
that
are
missing.
It's
characterized
by
medical
problems,
including
cardiovascular
disease,
developmental
delays
in
learning
challenges.
Those
often
occur
side
by
side
with
striking
memorabilities
high
social
Personalities
in
the
family,
from
music
when
syndrome
occurs
equally
in
males
and
females
in
all
cultures
worldwide.
B
B
B
Every
year
three
hours,
the
hospital
doctors
have
my
mom
adding
two
packages
of
fortifier
fortified
extra
categories
stir
breast
milk
because
they
didn't
feel
I
was
gaining
weight
quickly
enough
if
I
didn't
drink
all
the
bottle,
the
hospital
staff
didn't
put
a
tube
going
through
my
nostril
right
down
into
my
stomach.
I
was
finally
discharged.
Two
weeks
later
at
five
pounds
when
I
was
just
a
few
months
old.
My
daughter
hurt,
remember
heart
murmur
heart
murmur
and
he
sent
me
to
a
Cardiologist
for
an
echocardiogram
when
I
was
diagnosed,
where.
B
B
Yeah
they're,
my
first
five
years
of
life
I
had
lots
of
upper
respiratory
and
ear
infections.
I
eventually
had
to
have
tubes
put
in
my
ears.
I
had
five
surgeries
for
ear
tubes
because
after
they
fell
out,
I
was
still
having
issues,
so
they
had
to
keep
me
keep
putting
the
tubes
in
my
ears
compared
to
my
William
syndrome,
diagnosis.
My
daughter
had
me
going
through
all
sorts
of
tests
to
try
determinate
what
was
wrong
or
rule
out
other
things,
because
I
was
growing.
You.
B
C
B
Developmental
milestones,
for
example,
I
didn't
crawl
until
I
was
one
year
old
and
I
didn't
walk
until
I
was
two
years
old.
Some
of
the
tests
have
done.
Was
the
bone
age
studies
sweat,
yes
to
rule
out
cystic
statistic,
cystic
fibrosis,
fibrobres
and
lots
of
blood
tests.
My
daughter
even
sent
me
to
Boston
Children's
Hospital
to
see
a
GI
nutrients,
nutritionist
nutritionists
to
see
if
I
had
an
issue
with
proceeding,
processing,
processing,
complex
carbohydrates,
carbohydrates,
well,
I
was
there,
they
tried
to
have
a
geneticist
analysis.
B
B
We
had
a
good
Genesis
right
here
in
Vermont,
I
saw
the
Genesis,
but
at
that
time
he
didn't
disclose
what
he
was
thinking
and
said.
He
wanted
to
see
me
back
in
four
months.
Four
months
later
she
told
my
mom
about
Williamson
done
and
gave
her
a
brochure
that
explained
all
the
different
characteristics
of
brain
syndrome.
My
mom
said
the
brochure
described
me
to
a
T,
the
genus
geneticist.
C
B
Explained
the
reasons
for
wanting
to
wave
the
four
months
to
tell
my
mom
about
William
syndrome
was
because
he
wanted
to
see
how
my
official
features
developed.
This
is
because
people
with
women's
Syndrome
have
similar
facial
features
and
fractal
features,
and
the
facial
features
and
facial
features
become
more
prominence
as
a
person
that.
B
B
B
Aortic
aortic
stenosis.
This
is
a
common
heart
issue
for
people
with
Williams
syndrome.
The
doctor
told
my
mom
that
this
type
of
narrowing
would
require
open
heart
surgery,
age,
three
and
a
half
I
went
to
Boston's
children's
hospital
and
now
the
open
heart
surgery,
the
correct
the
narrowing.
If
I
didn't,
have
that
surgery,
the
narrating
narrowing
would
have
continued
to
get
worse
and
would
have
eventually
closed
completely.
B
Stopping
my
heart
from
beating
being
able
to
pump
blood
through
my
body
and
I
would
have
died.
One
side
of
my
heart
was
already
enlarged
from
Yvette
having
from
having
to
work
hard
to
work
harder
to
pump
blood
through
the
narrowing.
Well
at
Boston
for
my
heart
surgery,
I
developed
complications
after
the
surgery.
My
mom
thought
that
was
that
I
was
was
fussy,
which
was
not
normally
for
me
and
I
didn't
want
to
eat
myself.
They
did
an
emergency
echocardiogram
right
in
my
room
and
found
I
had
developed
fluid
around
the
heart.
B
B
And
didn't
have
to
go
back
and
to
put
into
drainage
tube,
to
put
in
a
drainage
tube.
The
hospitals
say
was
only
supposed
to
be
about
seven
to
five
days,
but
I
ended
up
having
to
stay
for
two
weeks
due
to
the
complications
during
my
school
year,
I
had
the
full-time
parent
executor
educator,
that's
what
I
said
educator
who
helped
me
with
all
my
schoolwork,
where
the
parent
Educators
help
I
was
able
to
get
on
the
underworld
several
times.
This
would
not
have
been
possible
without
that
help.
B
In
my
high
school
years,
I
was
the
school
of
mascot
Ace,
the
seahorse
as
some
of
the
high
school
football
basketball
and
field
hockey
games.
It
was
the
first
time
a
student
was
allowed
to
be
the
mascot
prior
to
that
a
staff
member
did
it.
I
also
helped
give
recognization
that
the
school
of
mascot
by
attending
several
mascot
events
in
the
community
I
did
University
of
Middle
Eastern
mascot
March
I
attended
a
champion.
A
champ.
The
lake
monster
was
birthday,
bash
and
uvm's
rally.
B
Birthday
party
I
also
attended
a
mascot
hoopapalooza
one
year
at
City,
Hall
Park
my
senior
year,
my
fellow
classmate
dedicated
the
yearbook.
To
me
this
was
the
first
time
in
BHS
history
that
a
graduating
senior
class
dedicated
the
yearbook
to
a
fellow
classmates
prior
to
that
it
has
always
been
dedicated
to
a
staff
member.
This
is
what
my
fellow
senior
class
members
said
about
me
to
some
of
the
seahorse
may
not
seem
like
a
fearsome
mascot,
but
for
the
students
and
faculty
of
BHS
is
the
seahorse
represents
much
more
than
a
costume.
B
If
you
want
to
see
ace
around
the
BHS
community,
you
don't
have
to
look
far
whether
he's
cheering
on
a
sports
team
posing
for
the
cover
of
the
yearbook
or
welcoming
new
students
to
our
school
Ace,
and
it
is
an
integral
it's
an
integral
part
of
expressing
our
school's
Pride.
It's
also
made
in
appearances
outside
of
the
BHS
community
at
events
such
as
hippopaloozak
Riley's,
Cat's
birthday
party
at
the
Eastern
Massacre
March,
when
the
class
of
2012
was
asked
to
has
made
the
lasting
impression
of
their
four
years.
B
At
BHS,
this
Choice
was
clear
for
the
past
four
years.
A
member
of
our
class
has
given
a
personality.
Oops
was
that
right,
yeah,
okay
to
the
character
of
Ace,
his
spirit
and
dedications
to
our
school,
has
just
has
sent
him
apart,
an
icon
in
a
role
model.
The
class
of
2012
would
like
to
dedicate
this
year's.
B
For
representing
and
encouraging
school
spirit,
essays
I
was
also
a
volunteer
Puppeteer
with
puppets
in
education.
I
was
their
bully
expert
and
over
my
four
years
in
high
school
traveled,
with
them
to
different
schools
to
perform
the
bullying
skits
I,
put
on
thousands
of
hours
in
volunteer
time,
while
the
staff
members
of
public
and
education
nominated
me
for
the
United
Way
Hometown,
hero
award
and
I
won
the
award
in
the
youth
category.
D
A
B
A
D
D
D
C
B
C
A
C
Also,
a
staff
member
in
elementary
school
that
she
used
to
run
the
after
school
program
there,
and
she
had
told
me
one
time
that
if
she
was
having
a
bad
day,
she
would
seek
out
Joshua
because
he
always
had
something
good
to
say
like
oh,
she
was
wearing
like.
Oh
your
pin's,
really
beautiful
or
you
know,
and
it
would
he
would
just
cheer
her
up.
So.
A
A
B
D
C
B
Well,
it
took
me
a
while
to
learn
what
he
actually
did
in
real
life.
So
I
was,
you
know,
listening
to
some
of
the
songs
on
the
radio
and
I
thought,
I,
don't
know
if
Michael
Jackson
really
dance,
but
then
by
watching
his
videos.
Just
really
inspired
me
to
get
that
feeling.
So
that's
why
you
know
I
started
to
learn
to
dance
like
Michael
and
performed
like
him.
When
I
went
as
an
example,
when
I
went
to
the
Champaign
Valley
Fair
I
got
to
see
a
Michael
Jackson
impersonator.
D
C
C
C
C
C
The
Flynn
he
did
in
the
theater
yeah
they
he
did
some
of
the
Flynn
dance
classes,
one
of
when
he
was
still
in
high
school.
There
was
one
of
his
teachers
that
told
him.
It
was
right
when
Michael
Jackson
passed,
and
so
there
was
a
teacher
at
the
Flynn
theater
that
was
doing
a
whole
class
tribute
class
of
just
all
Michael
Jackson
songs,.
D
B
C
The
dance
classes
and,
at
the
end
the
the
I
forget
how
long
the
dance
classes
were
like
eight
weeks
or
something
maybe
15
weeks,
I'm,
not
sure,
but
at
the
end
they
actually
get
to
perform
on
the
main
stage
at
the
Flynn
theater
and
anybody
can
go
and
watch
it.
They
just
asked
for,
like
a
you,
know:
monetary
donation
like
five
dollars
or
whatever
to
support
the
you
know
the
dancers.
B
D
A
A
B
I
love
my
family
very
much.
They
are
my
world
in
August
of
2015
I
lost
my
father
due
to
Suicide.
He
was
51.
That
was
a
very
difficult
time
for
me,
but
my
mom
and
friends
were
there
to
help
me
get
through
that
very
difficult
time.
I
miss
them
a
lot
when
I
graduated
from
high
school
I
first
wanted
to
start
my
own
mascot
in
business,
but
instead
I'm
doing
big
J
entertainment.
Instead,
after
being
out
of
his
school
for
several
years,
I
went
back
to
school
and
attended
the
think
college
program
at
UVM.
B
B
B
Some
of
my
favorite
travel
experiences
have
been
going
through
the
Warrington
conventions
in
different
states.
I
got
to
go,
I
got
to
do
a
lot
of
fun.
Things
like
going
to
Busch
Gardens,
amusement
parks,
seeing
a
Detroit
Tigers
game
at
the
home
stadium
and
seeing
my
most
favorite
entertainment
of
all
the
Blue
Man
Group,
a
fair
part
friendly,
a
friendly
vacation.
B
My
favorite
family
vacation
was
going
to
Bethany
Beach
in
Delaware,
also
like
going
to
Arizona
to
visit
my
aunt
and
do
lots
of
fun
sightseeing
things
there,
this
spring
being
my
mom
and
us
and
stepdad,
and
one
of
my
close
friends,
are
planning
to
take
an
Amtrak
train
to
New
York
City
for
the
weekend.
We're
planning
to
see
a
course
like
I
mentioned
the
Blue
Man
Group.
Was
it
the
9
11
Memorial
and
do
some
other
fun
things.
B
B
C
B
A
B
C
So
when
they
back
when
the
spot
on
the
dock
was
called
breakwaters,
they
would
play
there
a
lot
and
Joshua
was
always
up
there
in
front
of
the
band
dancing
and
he
was
mimicking
the
rub
board
and
then
Emily
she's,
one
of
the
leaders
of
the
band.
She
invited
him
up
on
stage.
You
know
to
and
gave
him
the
rubboard
and
he
just
started
jamming
with
him
so
now
periodically.
He
he
has
she.
She
has
invited
him
to
be
their
board
player
at
different
times.
C
D
C
C
C
When
he
was
real
little,
we
went
to
see,
went
down
to
New
Hampshire
and
we
saw
another
Zydeco
Band
Terence
Simeon
and
he
must
have
been
I.
Don't
know
he
must
I
think
he
was
over
five,
but
maybe
maybe
six
years
old
or
something
I
don't
know.
He
wasn't
that
old
and
doing
the
same
thing.
Playing
and
Terence
Simeon
invited
him
up
on
stage,
gave
him
the
red
board
and
he's
jamming
with
Taryn
Simeon.
B
A
D
C
One
of
the
I'll
tell
you
a
little
story
when
we
were
meeting
with
the
geneticist
the
second
time
after
the
four
months
going
back.
He
had
he
wanted
to
word
this
question
to
me
very
carefully
and
he
and
he
worded
because
he
didn't
want
to
prompt
my
response-
and
he
had
asked
me
he
says:
does
Joshua
have
an
unusual
attraction
to
music
and
I
instantly
said?
C
Yes,
because
the
house
that
we
had
before
it
was
a
raised
Ranch
his
bedroom
was
at
one
end
of
the
hall
of
the
house,
one
one
side
and
then
our
living
room
was
on
the
other
side.
I
had
new
MTV
back
when
MTV
was
all
music
I
had
MTV
on.
He
was
intently
playing
with
a
toy
in
his
bedroom.
He
heard
the
music
he
crawled
out,
sat
his
butt
in
front
of
that
TV
through
the
whole
video
started.
C
C
C
A
C
C
He
was
telling
my
husband
one
time
he's
like
he.
He
was
talking.
It
was
before
Joshua
had
hearing
aids
and
stuff,
but
he
was
talking
to
us
at
this
party.
You
know
the
marina
was
having
and
he
had
said
to
to
my
husband,
Dave
saying
strong
women
in
this
family
and
he
looked
at.
He
looked
at
Dr,
Murray
and
said:
I
know.
D
C
That
well
last
year,
he
you
want
to
tell
him
one
thing
that
you
tried:
I
got
into
Dragon
boating,
oh
yeah,
and
the
the
my
coach
had
invited
to
bring
one
time
my
mother
brought
him
down
just
to
watch.
He
wanted
to
watch
us,
and
so
the
coach
had
invite
him
says:
hey
bring
him
bring
him
along.
You
know
he
he
knew
Joshua
had
a
disability,
and
he
says
you
know
I'd
like
to
you
know
help.
C
B
Yeah
so
I
went
on
this
Dragon
bow
for
the
very
first
time
and
I
had
Jenny
at
the
time,
but
we
both
went
to
that
experience
and
I
couldn't
believe
how
incredible
these
people
are
when
it
comes
to
Dragon
Ball,
because
that's
my
new
favorite
thing
now,
because
I
got
to
go,
watch
Dragon,
Ball
festival
and
that
doesn't
inspires
me
to
see
something
like
that
happen.
So
on
that
boat
ride
and
I
tried,
you
know
it
was
something
like.
D
C
D
C
C
B
C
He
got
fourth
and
fifth
place.
The
fifth
place
should
have
been
a
fourth
place.
They
kind
of
messed
up
on
that,
but
but
he
yeah
he
did
during
the
preliminary
races
he
skied
the
fastest
he's
ever
skied.
It
was
one
of
the
shorter
races
like
100
meter
or
something
yeah,
but
he
skied
the
fastest.
He
had
ever
skied
and
the
competition
there.
Oh
my
Lord
it
was,
it
was
tough.
Really
tough.
I
mean
these.
It
was
amazing
to
see
what
these
athletes
can
do,
I
mean
and
how
fast
they
can
go.
C
D
C
B
C
B
D
A
B
C
And
all
of
that,
and
we
when
we
were
asking
questions
like
what
about
Special
Olympics,
you
know
because
then
we
didn't
know
what
his
schedule
was
going
to
be
and
and
there
were,
there
was
thought
that
he
might
be
working
on
the
weekends
and
like
well,
weekends
he's
got
Special
Olympics
During
certain
times
of
the
year
and
this
and
that-
and
they
said
they
were
very
supportive
of
that,
and
they
would
work
with
him.
You
know
so
that
it's
a
good
company
they're,
really
good
to
their.
C
C
A
C
B
C
C
C
B
C
Yeah
so
they're
like
little
little
mini
seminars
for
the
parents.
You
know
we
haven't
gone
in
many
many
years
now,
they're
only
every
two
years,
but
we
haven't
gone
for
a
while
because
he's
no
longer
in
school
anymore
and
the
cost
you
know
to
go.
Is
you
know
expensive,
but
but
yeah
we've
been
to
California,
we've
been
to
Michigan,
that's
where
their
home
office
is
based
out
of
is
in
Michigan,
we've
gone
to
shoot.
Where
is
it
Boston
Boston.
B
C
They
have
these
pods
that
you
sit
like
I,
don't
know
five
or
six
people
in
and
because
it's
an
arch,
it's
you
gotta.
They
talk
about
the
mechanics,
the
construction
of
how
they
thought
and
how
to
do
it,
but
it
it
kind
of
turns
and
rotates
as
it
goes
up
through
the
arch.
You
know
because
you
stay
you
stay
sitting,
but
it's
kind
of
like
a
pot.
It's
just
really
really
it's
cool.
It's
different.
Quite.
C
B
A
C
D
C
Thing
he's
been
a
finicky
eater,
which
is
very
common
with
people
with
William
syndrome,
also
because
they
have
issues
with
texture,
okay,
yeah.
So
when
he
was
little
in
in
preschool,
he
did
preschool
for
a
few
years
at
the
Y
he
didn't
used
to
like,
like
Silly
Putty
or
finger
painting.
He
didn't
like
the
texture
of
it.
It
took
him
a
while
to
get
used
to
that
stuff.
D
C
A
C
That's
right:
yeah,
the
one
of
the
characteristics
of
William
surname
is
they're.
They
have
very
sensitive
acute,
sensitive
hearing,
they're
called
hypercosis,
and
so
there's
sounds
like
blenders
vacuum
cleaners
he's
gotten
used
to
that.
You
know.
Vacuum
cleaners
at
least
are
very
so
their
their
hearing
is
so
hypersensitive
that
things
that
are
normal
for
us,
that
don't
hurt
our
ears
hurt
their
ears.
So,
like
blenders
Sirens,
you
know
body,
arms.
C
C
C
Very
interesting
because,
even
though
he
has
a
hearing
loss,
he
still
has
that
acute
sensitive
hearing
for
him,
like
I,
remember
being
in
the
car
one
time
we
had
the
radio
on
and
he's
like.
Oh
hear
the
bells
in
that
song
and
I'm
like
what
Bells
I
don't
hear,
the
bell
I
had
to
really
listen
and
then
I'm,
like
oh
yeah,
I,
hear
it
now,
but
I.
B
B
B
C
C
Know
it's
one
thing:
the
Williams
Cinema
Association
is
a
good
resource
for
families
of
people
with
William
syndrome
and
for
for
individuals
with
lamb
syndrome,
they're
very
supportive
and
lots
of
good
information.
You
know
all
all
the
seminars
that
I
went
to
would
talk
about
because
people
with
Williamson
when
they
have
a
certain
way
of
learning
and
they've
come
across
from
from
research
and
learning
how
they
learn.
C
What
are
some
best
approach
on
how
to
teach
them
to
to
learn
certain
things
you
know
and
yeah,
and
so
you
know
going
to
those
you
know
was
was
very
helpful
for
me
as
a
parent
and
I'll
never
forget
my
first
experience
going
there
sitting
there,
because
here
small
state
of
Vermont,
you
know
run
into
it
that
that
many
and
now
you
know
since
he's
he's
now
30,
we
have
a
good
number
of
people.
We
know
here
in
Vermont,
but
when
he
was
first
diagnosed,
we
didn't
know
anybody
with
that
diagnosis
and.
D
C
So
to
go
to
I
think
he
was
five
about
five
years
old,
the
first
convention
we
went
to
so
just
go
and
be
sitting
in
one
of
the
seminars
and
sitting
there.
Looking
around
you
know
the
person
is
talking
about
and
you're
sitting
there
you're
relating
to
what
they're
saying
you're
nodding
like
yes,
yes
and
you're
looking
around
and
all
the
other
parents
are
doing
the
same
exact
thing
of
like
wow
I'm,
not
alone
in
this
you
know
yeah
that.
B
C
Yeah
one
thing:
I
one
thing:
I
will
say
about
someone
with
William
zinnerman.
Their
musicality
is,
you
know
like
he
can't.
First
of
all,
he
can't
read
music,
that's
why
he,
but
he
can
play
by
ear
and
a
lot
of
not
everyone,
but
a
lot
of
them
do
have
like
Perfect
Pitch.
So
they
hear
like
he
can
pick
out.
Like
said
those
the
different
sounds
and
the
song-
and
you
know
the
different-
you
know
the
like.
The
bell
and
I
couldn't
even
hear
it
until
I
listened
to
it.
C
C
One,
but
one
of
the
things
with
them
is
that
they,
so
they
emotionally
feel
that
music.
It
just
goes
right
through
them,
like
one
person
on
it,
was
on
a
60
Minutes
segment,
where
they
interviewed
a
few
people
with
William
sanderman,
one
woman
said
it
was
like
music
is
like
soup
flowing
through
or
something
like
that.
She's
interesting.
Yes,.