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A
Thank
you,
the
finality
of
a
business
as
a
members,
business
debate
to
motion
179
48,
the
name
of
:
Smith
on
idiopathic
pulmonary
fibrosis
week
2019
this
debate
will
be
concluded
without
any
questions.
Being
Putin
I
can
ask
those
members
who
wish
to
speak
the
debate
to
press
the
request
to
speaking
buttons.
No
and
I
call
him
Colin
Smith
to
open
the
debate.
Mr.
Smith,
please
Thank.
B
No
dad
wasn't
without
his
health
challenges.
He'd
suffered
a
a
couple
of
heart
attacks
over
the
years
and
been
diagnosed
with
heart
disease
and
also
diabetes,
but
it
was
a
strong
and
active
man.
So
when
I
asked,
if
he
was
feeling
okay
did
he
want
me
to
to
cut
my
grass.
He
said:
don't
be
daft
I'm,
fine,
just
a
little
tired
and
anyway
I've
seen
the
state
of
your
lawn
after
you've
cut
it
a
few
weeks
later
or
dad
developed
a
dry
cough
again.
He
brushed
my
concerns
aside
soon.
B
The
cost
became
a
chest
infection
and
I
convinced
him
to
go
to
the
GP
who
treated
him
with
antibiotics,
but
the
infections
became
more
frequent
each
time
taking
longer
to
treat
and
longer
to
recover
from
the
GP
also
detected
a
buildup
of
fluid
on
Dad's
lungs.
This
was
put
down
to
his
heart
disease
and
doctors
began
adjusting
his
medication,
but
to
little
effect,
tiredness
became
breathlessness
when
walking
even
the
shortest
distance.
B
Dad's
GP
prescribed
oxygen
at
home
to
help
ease
his
symptoms
of
fewers
idea
to
begin
with,
but
soon
all
day
when
he
was
at
home
more
than
a
year
after
the
first
symptoms,
the
hospital
admissions
became
more
frequent,
but
there's
no
real
diagnosis,
other
than
dad's
long-standing
heart
disease
and
the
early
2013
dad
was
admitted
to
hospital.
Yet
again,
when
his
breathing
became
more
and
more
difficult,
then
one
day
in
hospital
out
of
the
blue,
he
said
to
me
good
news:
they've
got
to
the
bottom
of
what's
wrong.
B
At
last,
I've
got
idiopathic
Palmieri
fibrosis,
though
I
had
never
heard
of
it,
but
I.
Remember,
leaving
hospital
that
day
actually
feeling
quite
upbeat
after
months
of
frustration
watching
the
one
person
who
never
let
anything
get
in
his
way
battling
just
to
walk,
even
the
shortest
distance.
Without
being
out
of
breath,
I
thought
at
last
you've
got
to
the
bottom
of
the
problem
they
can
now
get
on
with
fixing
it
I
weigh
at
homeand
ed
what
we
all
do,
a
Google
search,
the
condition
to
find
out
what
IPS
was
and
what
more
could
be
done.
B
The
results
told
me
that
the
IPS
was
skerin
of
the
lungs.
It
caused
the
lungs
to
harden,
making
it
more
difficult
to
breathe,
but
in
a
radar
and
remember
feeling
sick
to
the
pit
of
my
stomach
when
I
did
it
said
the
scar
tissue
cannot
be
repaired,
there's
no
cure
for
IPF
survivability
is
worse
than
for
most
cancers.
If
you
survive
more
than
three
to
five
years
after
diagnosis,
there's
no
drugs
that
would
make
any
meaningful
this
difference.
B
In
fact,
I
remain
my
dad's
consultant
prescribing
steroids
openly
admitted
they
were
unlikely
to
have
any
effect
at
all.
That
continued
about
was
condition
began
to
deteriorate
further.
The
impact
of
the
IPF
was
simply
putting
too
much
pressure
on
his
heart
condition,
almost
two
years
after
first
showing
symptoms
of
IPF
just
weeks
after
being
diagnosed,
he
passed
away
when
they
ate
from
me
2030.
B
B
A
serious
shortage
of
data
on
IPF
ever
makes
it
difficult
to
get
a
precise
idea
of
the
impact
of
these
regional
and
equalities
with
neither
the
NHS
and
formation
services
division,
nor
the
Scottish
government
holding
the
essentially
and
how
many
people
are
diagnosed
with
IPF.
But
from
the
information
we
do
have.
We
know
that
IPF
as
a
growing
problem,
with
both
prevalence
and
mortality
from
increasing
here
and
across
Europe.
It
remains
a
purely
understood
condition.
B
B
More
than
half
of
patients
were
in
more
than
6
months
to
be
diagnosed
with
one
in
five
we
and
more
than
two
years,
the
government's
up
in
common
rest,
with
a
clear
action
plan
as
a
chance
to
help
change
that
to
make
much-needed
progress
and
both
the
diagnosis
and
the
treatment
of
IPF
as
critical.
The
GPS
that
other
healthcare
professionals
have
the
knowledge
and
training
to
recognize
symptoms
and
to
know
to
run
the
appropriate
tests.
A
proper
lung
cancer
screening
program,
for
example,
at
least
in
the
form
of
a
pilot,
would
help
detect
lung
cancer.
B
Earlier,
instead
of
the
current
position,
were
half
of
all
diagnosis
of
such
cancer
is
condors
at
the
most
advanced
stage,
but
it
also
helped
detect
other
conditions
such
as
IPF,
initially
greater
understanding
of
how
IPF
relates
to
other
conditions
and
how
it
presents
and
knows
with,
for
example,
heart
disease.
More
also
needs
to
be
done
to
improve
treatment.
B
I
say
there
when
Dad
was
diagnosed,
there
were
many
drugs
that
could
make
a
difference,
but
today
a
new
medication
such
as
then
Ted,
an
herb
and
perfo
needn't
have
been
shown
to
slow
down
the
progression
of
the
condition
not
only
extending
lives
but
improving
the
quality
of
life.
These
medications
are
only
available
to
those
with
lung
function
of
below
80%
and
screwed
in
many
who
would
benefit
from
early
intervention
to
improve
their
life
expectancy
and
there's
also
a
postcode
lottery
when
it
comes
to
the
prevalent
of
such
medication.
B
Well,
these
medications
can
help
to
slow
down
this
garden
process.
We
know
that
IPF
still
can't
be
stopped
entirely.
That's
why
a
long
term
specialist
support
is
essential.
Specialist
nurses
have
a
vital
role
to
play
in
delivering
that
high
quality
expert
care,
those
living
with
IPF
need,
but
a
pleasant
provision
is
still
awfully
lacking
when
we
for
health
across
Scotland
have
access
to
any
specialist
nurses
change
and
dealing
with
IPF
and
even
then
the
time
is
incredibly
strange.
For
example,
there's
just
one
specialist
nurse
covering
the
entirety
of
NHS,
Greater,
Glasgow
and
Clyde.
B
The
rest
with
the
kill
action
plan
therefore,
should
include
increasing
specialist
nurses
from
IPF
across
Scotland
as
a
key
priority,
but
as
well
as
very
limited
access
to
specialist
nurses
access
the
pulmonary
rehabilitation
also
varies
significantly.
Such
Reber
rehabilitation
is
typically
associated
with
the
treatment
of
COPD,
but
it
can
be
useful
to
those
with
IPF,
as
well
as
equipping
people
with
exercises
to
improve
the
fitness
and
helping
them
to
control
the
physical
symptoms
of
the
condition.
It
also
acts
as
a
source
of
support
and
information
from
health
professionals
and
peers
with
similar
conditions.
B
Yet,
despite
these
clear
benefits
that
are
fairly
and
some
areas
as
low
as
2%
with
capacity
consistently
fallen
short
of
demand,
an
issue
I
know
that
the
charity
chest
Heart
and
Stroke
of
Campion
and
vigorously
to
improve
presenting
officer.
Much
more
can
and
needs
to
be
done
to
improve
the
diagnosis
and
the
treatment
of
idiopathic,
pulmonary
fibrosis
and
hope.
The
government's
respiratory
care
action
plan
will
help
deliver,
'la,
they'll
stand
and
work
of
the
flesh,
Lung,
Foundation
and
Campion
so
effectively.
B
Aurelius
of
lung
health
also
will
play
a
vital
part
and
I
hope
to
play
my
part
as
the
IPF
champion,
but
in
the
long
term
we
should
not
sail
from
managing
the
symptoms
of
a
fatal
condition.
In
the
last
six
years.
Since
my
dad
passed
away,
we
have
seen
advances
and
the
medicines
available
and
with
enough
investment
and
research,
we
can
turn
the
focus
from
manager
in
this
dreadful
condition
to
better
understand
that
its
causes
and
ultimately
cure
or
prevent
an
idiopathic,
pulmonary
fibrosis.
Thank
you.
Thank.
A
C
You
presiding
officer
I'd
like
to
first
of
all
congratulate
Colin
Smith
for
bringing
this
important
motion
to
Parliament
today,
welcoming
idiopathic
pulmonary
fibrosis
week.
I'd
also
like
to
thank
the
British
Lung
Foundation
and
chair
Starfall
Scotland
for
their
briefings
ahead
of
this
debate
of
very
helpful.
Today's
to
be
allows
us
to
raise
awareness
about
interstitial,
lung
disease
and
idiopathic
pulmonary
fibrosis,
ILD
and
IPF,
and
Colin
Smith,
as
the
parliament's
IPF
champion,
has
laid
it
out
perfectly
in
his
opening
remarks,
especially
referring
to
his
dad
story.
C
British
Lung
Foundation
has
recently
created
a
number
of
lung
health
champions
and,
as
convener
of
the
cross-party
group
for
lung
health,
I
was
delighted
to
submit
a
motion
congratulating
VLF
for
the
lung
health
champions
initiative.
This
initiative
aims
to
raise
awareness
of
many
lung
and
respiratory
conditions,
including
IPF,
which
caused
pure
respiratory
health,
often
leading
to
severe
consequences,
the
need
for
hospitalization,
ongoing
medication
and
treatments
and
even
end-of-life
support
I'm
sure
we
will
all
be
raising
these
specific
issues
in
future
members
debates
which
will
keep
lung
health
high
on
the
Scottish
health
agenda.
C
Indeed,
I'm
looking
forward
to
the
Scottish
Government's
publication
of
Scotland's.
First,
respiratory
care
action
plan
before
the
end
of
this
year,
the
Scottish
Government's
respiratory
care
action
plan
is
led
by
NHS
T
sites.
Dr.
Tom
Thornton,
dr.
Farland,
has
been
very
active
in
progressing
this
piece
of
work
and
will
present
a
draft
of
the
plan
at
next
at
the
next
lung
health
cross-party
group
in
November,
which
I
welcome
the
minister
to
attend.
If
possible.
C
It's
free
its
interactive
and
it
can
be
used
as
part
of
evidence
for
re-registering,
which
is
what
I
did
at
the
weekend.
I
completed
the
IPF
module
myself
and
I
will
be
able
to
use
that
for
my
own
portal
of
learning
to
keep
up
my
own
nurse
registration
and
I'm
sure
chamber
knows
already.
I
am
a
registered
nurse,
so
this
module
provides
lots
of
information
and
it
does
include
ILD
and
IPF,
including
the
challenges
of
managing
breathlessness,
which
is
associated
with
IPF.
The
module
represents
M.
C
It
presents
many
of
the
data
that
we
have
heard
already,
and
the
assessment
diagnosis
and
causes
and
treatments
such
as
rheumatoid
arthritis,
as
one
as
one
immune
system
cause
systemic
sclerosis
lupus
and
dermatomyositis,
and
it's
very
interested
to
hear
that.
There's
two
and
a
half
thousand
people
affected
in
Scotland
and
more
common
in
Maine
is
IPF
and
ILD,
and
more
common
in
men
and
women
and
more
common,
but
not
limited
to
persons
over
65.
The
module
highlights
the
effectiveness
of
pulmonary
rehab
again
as
well,
and
thanks
to
chest
Heart
Stroke
Scotland.
C
This
is
a
great
resource.
My
final,
my
final
thoughts
for
today
in
relation
to
IPF
and
ild
as
I'd
like
to
ask
the
minister
what's
been
done
in
Scotland
regarding
vaping,
were
hearing
really
like
interesting
news
and
concerns
from
America
regarding
deaths
and
illnesses
linked
to
vaping,
so
be
curious
to
ask
the
the
Minister.
Are
we
doing
any
evidence
gathering?
C
Is
there
any
research
being
conducted
in
Scotland
and
I'm
looking
at
where
their
particular
asks
aspects
of
vaping,
that's
contributing
to
poor
lung
health,
IPF
and
even
ILD,
and
I
look
forward
to
his
response
for
that
and
again
I
thank
Allah
Smith
for
raising
this
IPF
motion
today.
Thank
you.
Thank.
D
You
dfd
of
Learning
Officer
I
am
delighted
to
be
able
to
take
part
in
this
very
important
debate
and
congratulate
Colin
Smith
on
securing
it,
and
also
for
the
very
personal
account
of
his
father's
diagnosis.
I
think
that's
just
shows
the
live
situation
we
find
ourselves
in,
as
we
already
heard,
idiopathic
pulmonary
fibrosis
causes
filing
of
and
scarring
of
the
lungs
and
they're.
Currently
there
is
no
cure
and
the
awareness
week
that
has
been
talked
about
is
to
be
commended.
D
This
is
a
serious
situation
they
are
representing
of,
especially
as
there's
little
known
about
the
debilitating
condition,
both
in
the
medical
world
and
in
the
wider
public.
In
many
cases,
and
by
comparison
of
other
diseases
in
the
family
of
pulmonary
fibrosis,
little
seems
to
be
known
about
the
awareness
of
this
and
I
think
that
has
to
change.
D
We
need
to
have
that
awareness
increased
and
also,
as
already
has
been
raised,
the
number
of
nurses
that
are
able
to
be
deployed
needs
to
be
increased
so
that
we
can
develop
that
process
and
I'm
sure
that
the
minister
will
mention
that
in
his
summing
up,
there
are
very
little
statistics
about
information
in
the
NHS
here
in
Scotland.
However,
I
pay
tribute
to
the
British
Lung
Foundation
and
their
battle
for
breath
report
which
estimated
that
30
2,500
people
across
the
UK
of
IPS
and
around
5,200
people
across
the
UK
die
from
IPF
every
year.
D
Putting
that
into
context
that
is
more
people
dying
from
that
than
die
from
leukemia.
The
British
Frank
Lung
Foundation
statistics
also
show
that
the
death
rates
here
in
Scotland
are
higher,
with
an
average
of
11
point.
3
people
in
Scotland
per
100,000
in
2011,
compared
with
9
point
4
in
England
and
Wales,
and
the
mortality
rate
is
also
rising
throughout
Europe,
and
we
see
here
in
the
UK,
the
an
increase
of
3.8
in
females
and
4%
in
males.
The
British
Lung
Foundation,
however,
has
spent
in
excess
of
two
and
a
half
million
pound
in
funding.
D
Fef
research,
but
they
urgently
need
more
funding
so
that
we
can
find
and
secure
and
Luca
the
treatments,
the
the
causes
and
also,
ultimately
the
cure.
In
addition,
it's
also
important
that
we
look
at
the
care
and
support
of
people
living
with
the
disease,
because
that
needs
to
be
addressed
and
looked
at
because
there
is
a
postcode
lottery.
It
would
appear
across
Scotland
when
it
comes
to
that.
D
As
we
already
heard
the
cases
they
have
breathless
chronic
cough
and
that
then
builds-
and
there
are
two
sort
of
ways
that
the
diagnosis
happens:
it
hardens
the
lungs
and
it
makes
the
individual
find
it
difficult
to
inhale
and
to
breathe.
It
also
attacks
and
scars
the
content
of
the
lung,
and
that
has
difficulty
with
the
bloodstream
and
oxygen
passing
through
the
bloodstream.
It's
clear
that
the
causes
and
conditions
affect
many
people,
but
it
has
been
found
that
the
majority
are
older.
D
In
the
sixty
to
seventy-five
age
group
that
the
disease
becomes
much
more
prevalent,
we
don't
seem
to
have
it
in
younger
people
and
we've
talked
and
by
this
evening
already
about
environmental
factors
about
conditions
that
may
be
and
breathing
in
dust
and
where
we
have
individuals,
who've
worked
with
wood
or
metal
or
textiles
or
stone
in
their
normal
day-to-day
life.
They
find
themselves
becoming
more
prone
to
the
disease,
and
we
also
have
to
think
about
those
days.
Look
and
some
very
good
comments
have
been
made
this
evening.
D
Remember
Harper
beeping,
because
that
is
a
major
issue
and,
as
you
rightly
identify
there
are
some
very
startling
reports
coming
out.
That
could
really
change
the
way
that's
managed.
So
I
think
we
need
to
be
very
upbeat
about
where
we
are,
but
we
also
have
to
think
about
the
research
that's
currently
being
held
and
and
going
into,
because
some
people
believe
that
the
factors
that
take
place
are
are
vitally
important.
D
So
funding
is
urgently
needed
to
be
established,
deputy
presiding
officer
so
that
we
can
find
out
and
distinct
cures
and
better
treatment
for
patients
who
have
IPF
and,
in
conclusion,
it's
up
to
all
of
us
to
raise
that
awareness.
I
said
at
the
beginning.
This
debate
this
afternoon
is
one
way
of
achieving
that.
Each
MSP
has
the
ability
to
ensure
that
the
awareness
has
risen
in
their
own
constituency
and
across
their
own
region.
Also,
funding
is
vitally
important.
Alongside
research
and
scientific
proof.
D
E
Unlike
other
respiratory
and
long
illnesses
like
COPD,
for
example,
I
would
ignore
the
points
made
about
the
comparatively
low
awareness
of
IPs
prior
to
the
recent
work
of
the
British
Lung
Foundation
I,
have
to
admit
my
own
knowledge
of
their
slave.
Shortening
condition
was
patchy.
It
was
shocking
to
me
that
as
many
as
5200
people
across
the
UK
die
from
this
disease
each
year
and
his
equalist
wedding
at
Scotland
and
the
UK
have
some
of
the
highest
mortality
rates
in
Europe.
E
That's
why
I
have
to
commend
VLA
for
the
work
they
have
already
done
and
raising
awareness
of
this
condition.
The
BLF
Commission's
of
Hanlin
Pulford
IPF
week
confirms
that
awareness
of
this
condition,
as
law
with
over
three-quarters
of
respondents,
day
thing
that
they
wouldn't
know
what
to
do
after
were
diagnosed
about
the
condition
and
more
research
into
IPF
as
needed,
but
a
condition
that
affects
so
many
Scots
establish
that
the
treatment
options
for
managing
IPS
remains
so
narrow.
E
It
must
be
really
difficult
for
those
affected
and
their
families,
and
it's
clear
that
early
diagnosis
is
absolutely
key,
so
that
we're
doctors
collection
is
dependent
on
lung
function.
Those
of
IPF
have
as
much
time
as
possible
with
their
loved
ones
and,
as
a
recently
appointed
BLS
Parliament
a
champion
for
a
poem
that
we
have
for
of
the
place.
As
of
yesterday,
I
can
assure
colleagues
across
the
chambers
and
those
watching
mr.
E
bee,
that
I
will
do
all
that
I
can
to
help
raise
awareness
and
improve
the
availability
of
treatment
for
those
with
IPF
and
I'm
delighted
to
be
working
with
so
many
long.
Health
champions
right
across
the
chamber.
I
was
disappointed
to
learn
that
only
50
percent
of
IPF
patients
have
completed
a
course
of
home
that
a
rehab
and
the
only
14
percent
received
home
that,
if
you
have,
which
is
specifically
tailored
to
their
needs,
the
ILD
specific,
pulmonary
rehab
classes,
which
is
delivered
English.
E
A
classical
and
clades
have
made
significant
improvements
to
patients
managing
their
chronic
conditions,
but
it
is
deeply
unfair
that
their
service
as
an
equilibrium
right
across
Scotland
I'm
sure
that
we
would
all
like
to
see
this
type
of
specialist
care
developed
and
delivered
and
health
boards
across
the
country
and
is
something
that
needs
to
be
addressed.
And
the
forthcoming
respeto
check.
Here
action
plan
and
conclusion
residing
office
said.
We
know
that
lung
diseases
like
IPF,
caused
misery
for
patients
and
their
families
right
across
Scotland.
E
E
I
simply
like
to
see
this
proposed
respected,
shakier
action
plan
be
brought
forward
as
quickly
as
possible
and
for
that
to
contain
some
concrete
actions
and
how
we
can
start
to
improve
data
collection
and
treatment
for
those
with
IPF
and,
as
Colin
Smith
pointed
out,
increasing
specialist
narcy's,
who
are
so,
he
did
and
I
think
a
my
heart
has
made
some
really
good
points
about
vaping
of
tabled.
A
number
of
parliamentary
equations
have
had
a
few
responses
back,
but
it's
clear
that
we
need
to
be
very
vigilant
about
vaping
and
take
a
precautionary
approach.
E
F
You
presiding
officer
and
find
you
Cowan
Smith
for
secureness
debate
in
the
chamber
today.
I'd
also
like
also
like
to
take
a
moment
to
welcome
a
daughter,
a
105's
IPF
group
members
to
Parliament
in
this
debate,
but
many
others,
people
interfere
recently.
I
didn't
know
much
very
much
about
idiopathic
pulmonary
fibrosis
at
head
of
it,
but
then
fully
understand
the
disease
or
appreciate
impact.
F
The
husband,
individuals
and
families
until
I
had
it
along
to
show
my
support
for
a
Fife
and
TSI
support
group
when
held
unaware
of
Stowe
Victoria
Hospital
stall
was
the
only
successful
raising
over
three
hundred
pounds
was
a
great
opportunity
to
highlight
effects
of
his
disease.
Despite
a
steady
increase
in
the
number
of
people
living
with
the
condition
and
remains
are
purely
understood,
an
incurable
disease.
There
are
two
treatments
for
IPF,
but
they
only
help
to
reduce
the
rate
at
which
it
progresses
and
can
often
have
significant
and
severe
side
effects.
F
Equally,
a
lung
transplant,
which
is
only
suitable
for
a
few
people,
is
the
only
other
way
with
an
average
life
expectancy
of
only
three
to
five
years.
Following
our
diagnosis
of
IPF,
it's
clear
to
see
just
how
important
it
is
to
ensure
the
proper
support
is
available
to
patients.
The
facts
and
figures
relate
to
vessel
disease
are
startling,
but
it
wasn't
until
I
met
with
some
members
of
a
local
support
group.
F
The
harsh
we'll
start
with
the
reality
of
when
this
current
disease
really
hits
home
a
5
inch,
HD
IPS
support
group
is
one
of
three
in
Scotland
has
been
active
since
in
November.
2017
born
out
of
need
for
individuals
and
families
who
are
desperate
for
information
reassurance
support
an
understanding
of
hope
as
a
place
where
friendships
are
made.
F
The
group
currently
has
an
region
of
27
members,
but,
as
one
member
explained
to
me,
due
to
the
often
rapid
progression
of
the
disease
and
the
increasing
the
people
being
diagnosed
with
IPS
number
can
fluctuate
greatly
over
a
very
short
space
of
time.
I
was
saddened
to
hear
that,
as
one
small
group
alone
had
lost
five
men
of
his
members
this
year.
Speaking
to
them,
it
was
clear
to
see
just
how
vital
support
such
as
this
group
is
not
only
for
viewers.
F
I've
received
the
diagnosis
but
to
her
family
and
loved
ones,
once
I
think
we
had
when
they
discussed
a
moment
in
the
consultant
rooms,
listen
to
a
diagnosis
or
shock
bewilderment
and
confusion,
because
we
know
that
you
have
a
chronic
and
progressive
lung
disease,
but
has
no
pun
or
known
cause
in
which
you
have
probably
never
heard
of
before,
for
which
there
is
no
cure
tears
people's
worlds
apart.
How
did
this
happen?
Why
did
this
happen
or
happened
to
me
now
and
how
long
do
I
have
faced
with
such
uncertainty?
F
A
multitude
of
unanswerable
questions
sufferers
can
offer
find
themself
spiral
into
depression
as
a
result,
which
is
why
access
to
practical
advice,
the
support
of
this
crucial
time,
is
so
important.
It's
vital
what
patients
have
given
them,
much
as
much
information
as
possible
and
made
aware
of
a
support
that
exists.
One
member
of
Fife
and
T
side
rebound
described
the
moment
he
was
diagnosed
from
a
year
of
being
treated
for
COPD
and
he
didn't
drop
at
first.
Both
my
wife
and
myself
were
just
relieved,
but
I
didn't
have
cancer
of
some
sort,
not
realizing.
F
The
IPF
is
in
fact
a
terminal
condition.
I
am
NOT
a
fan
of
looking
up
internet
and
medical
matters
because
it
usually
gives
examples
of
worst
cases.
However,
on
this
occasion
curiosity
got
the
better
of
me
and
I
whipped
up
IPF,
it's
fair
to
say
we
were
both
stunned
into
silence.
By
what
we
read
another
member,
Robert
or
Bob
describes
his
experience.
F
The
doctor
told
me
he
thought
I
had
IPF
I,
never
heard
of
it
before
he
printed
me
a
three-page
article
and
sent
me
on
my
way
when
I
got
back
into
my
car
I
said
and
read
the
printout.
It
was
only
in
the
last
page.
In
the
last
paragraph,
I
read
the
prognosis
of
three
to
five
years.
Life
expectancy.
It
completely
knocked
me
for
six
wolfies.
F
Gentlemen,
have
now
sadly
passed
away,
but
testimony
is
clearest,
illustrates,
need
for
increased
awareness
and
understanding
of
his
disease,
so
in
conclusion,
presiding
officer
and
welcome
options
of
action
for
pulmonary
fibrosis,
the
British
Lung
Foundation
and
the
pulmonary
fibrosis
trust
and
every
single
support
group
across
the
country
during
IPF
world
week,
as
they
want
to
advance,
understand
understanding
and
increase
awareness
of
his
DS
and
the
devastating
impact
that
has
on
life
saw
sufferers
and
their
families
as
a
search
continues.
I
very
much
hope
new
treatments
and
ultimately,
a
cure
can
be
found.
F
A
H
G
Chimney
through
IPF
his
file,
his
families,
don't
see
that,
because
in
reality,
that
is
going
to
be
much
more
effective
than
anything
else
that
we
are
able
to
add
to
the
debate
today.
So
I.
Thank
them
for
that
I
mean
what
causes
idiopathic
pulmonary
fibrosis
I
mean
it's
part
of
a
group
of
conditions
known
as
interstitial
lung
diseases
that
cause
scarring
to
the
tissue
deep
inside
the
lungs
which
in
turn
prevents
proper
air
flow
from
occurring
within
the
lungs,
and
it
gets
progressively
worse
in
several
cases
of
interstitial
lung
disease.
G
The
cause
is
known
who
about
in
the
case
of
idiopathic,
normally
fibrosis,
the
cause
is
unknown,
I
mean
the
medical
term
for
unknown
causes
is
idiopathic.
Therefore,
IPF
is
defined
as
a
lung
scarring
of
unknown
cause,
although
that
the
causes
of
IPF
are
unknown.
There
are
certain
factors
that
may
increase
I.
Think
me
as
an
important
what
here
it
to
me.
It
says
that
we
don't
know
enough
about
this,
this
this
issue.
It
may
increase
a
person's
chances
of
developing
it.
These
are
known
as
IPF
risk
factors
which
can
include
as
repaired
cigarette
smoking.
G
To
me,
the
direction
of
travel
of
decided
to
go
in
is
the
fact
is
that,
if
we,
it
makes
sense
to
me
that
something
like
cigarette
smoking
weed
would
would
certainly
add
to
the
risk
factor
and
that's
something
that
this
parliament
has
really
grown.
Baking
work
on
this
particular
ship
I.
Think
it's
so
important
is
that
we
continue
to
drive
and
drive
that
what
for
because
I
think
that
that's
something
that's
it's
certainly
not
finished.
G
G
Maybe
we
all
have
herpes
viruses
as
well,
and
but
the
other
one
that
really
jumped
out
to
me
was
this
exposure
to
environmental
pollutants,
including
that
sort
of
inorganic
dust
and
silica
and
hard
metal,
dusts
organic
dusts
by
Tilly
and
animal
proteins
gases
and
fumes
and
again
the
environment
is
something
that's
becoming
so
much
more
to
the
fore
and
it's
something
that
we
can
amp
right
there.
There
are
also
certain
medications
as
well
to
keep
the
heartbeat
regular,
apparently
Crohn's
disease
unit
with
tract
infections,
rheumatoid
arthritis,
some
chemotherapy
or
cancer
medicines.
G
It
can
have
a
negative
impact
on
it
and
and
geostrophic
all
reflux
disease
that
jailed
scientists
are
phone,
that
nana
obtained
people
with
IPF,
also
half
grd.
As
a
result,
some
scientists
think
that
people
who
have
a
grd
me
breathe
and
tiny
drops
of
acid
from
their
stomach
and
a
regular
basis
which
may
injure
the
lungs
and
lead
to
IPF.
G
I
Thank
You,
deputy
presiding
officer
Dan,
can
I
start
as
those
I've
done
by
thanking
Col
Smith
for
bringing
this
important
debate
forward
and
can
also
genuinely
thank
Colin
for
telling
the
story,
whereas
dad
you
know
which
really
can
assure
no
light
on
IPF
and
some
of
the
issues
of
camo
and
during
the
course
of
the
debate,
and
was
clear
as
that,
it's
it's
a
disease
that
was
not
enough
known
about,
and
hopefully
the
debate.
What
haven't
innate
will
help
raise
that
awareness.
I
I
I
want
to
pay
tribute
to
them
and
they
recently
hosted
me
where
a
group
of
patients
are
the
new
Victoria,
Hospital
and
Glasgow
patients
who
attended
classes
for
people
with
lung
disease,
particular
COPD
and
those
patients
explained
the
negate
benefit
those
classes
had
had
in
terms
of
helping
them.
The
exercises
for
the
lungs
they're
not
also
education,
about
that
the
various
conditions
I
think
what
they're
to
be
as
broad
as
that
there
are.
There
are
a
number
of
actions
that
we
need
to
look
look
out
as
a
parliament.
What
can
across
parties
going
forward?
I
Clearly
we
need
to
raise
green,
an
awareness
of
ipfs,
there's
little
known,
I,
think
in
the
public
domain
about
the
disease
and
all
serious
blind.
What
all
others
were
seen
the
causes
of
the
illness
and
we
need
to
greater
understand
the
different
treatments
that
can
that
can
be
used
as
I
say
that
only
click
on
the
two
drugs
I
think
part
of
that
has
got
to
be
the
production
of
a
desperately
care
plan
and
I
welcome
the
fact
that
the
Scottish
government
is
going
to
reduce
that
later
than
a
year.
I
I
think
that
all
you
know
all
of
the
issues
that
we've
discussed
here
this
evening
so
in
summing
up
their
putative
to
say
no
officer
thank
Colin
Smith
for
bringing
forward
us
to
be
for
sharing
these
personal
experience,
all
the
contributions
that
we've
all
made
this
evening
or
then,
if
I,
some
forum
action
points
not
just
for
the
government
that
for
parliamentarians
as
a
whole
and
groups,
like
the
brief
long
Foundation
aside,
Parliament
the
campaign
so
strongly
on
these
issues.
Thank.
H
You
presiding
officer,
I'm
delighted
to
respond
behalf
of
the
government
and
I
want
to
add
my
congratulations
to
Colin
Smith
for
securing
that's
important
to
be
one
hard
as
well.
My
my
thanks
to
Colin
for
for
an
Sheeran
as
his
dad's
experience
and
although
I
wasn't
small
ology,
it's
not
easy
and
I
could
hear
that
was
bringing
things
back
back
to
you.
So
thanks
for
for
for
for
doing
that,
and
because
it
does
help
and
because
understand
exactly
what
it
is
were
what
we're
talking
about
here.
So
thank
you
very
much.
H
We
know
em
the
impact
that
living
with
this
condition
has
on
individuals
and
their
families,
and
we've
had
some
of
that
across
the
chamber
and
and
one
of
the
difficulties
of
the
condition
is
that,
as
we've
heard,
we
don't
yet
know
what
causes
it
and
yours
there's
lots
of
suggestions
and
it's
a
reasonable
suggestion
that
that
smoking
may
very
well
be
a
contributory
factor.
Anderson
as
Bryan
a
widow
said,
and
this
Parliament
has
got
a
good
record
in
terms
of
the
work
that
we've
we've
done
on
on
tobacco.
H
It's
groundbreaking,
but
as
bimetal
said,
it
is
not
finished
and
Emma
Harper
also
raised
the
suggestion
that
perhaps
the
vaping
could
be.
You
know
a
future
cause
and
you
asked
for,
for
you
know
what
our
position
was
on
that
and,
of
course
the
Scottish
Government
has
and
I
think
rightly
taking
a
precautionary
approach,
and
we've
introduced
legislation
in
relation
to
e-cigarettes
to
restrict
the
availability
to
young
people
and
non-smokers
and
Scotland
as
the
first
country
in
Europe
to
consider
a
ban
on
all
advertising
and
promotion
of
electronic
cigarettes.
H
G
H
I
think
and
I
was
actually
on
the
contractors
and
Colin
Smith
raised
M
health
and
equalities
and
I
think
on
both
of
these
points.
Data
is
actually
really
important
and
in
in
providing
in
improving
services
and
decision
making.
So
we
need
to
I
agree
how
we
can
improve
collection
of
high-quality
data
in
the
rest,
esperate
an
action
plan
which
I'll
talk
about
later
so
I'm
gonna
get
time
and
we'll
provide
an
opportunity
for
a
sticking
instead
of
data.
H
Because
of
those
challenges
that
really
is
crucial
that
the
work
of
third
sector
partners,
what
they
undertake,
is
really
crucial.
It's
vital
in
helping
support
people
living
with
the
condition
and
I
think
that's
why
it's
important,
as
James
Kelly
said
that
we
raise
awareness
in
terms
of
raising
awareness.
H
I
want
to
particularly
congratulate
a
British
Lung
Foundation
for
their
meet
the
experts
event
that
has
raised
awareness
of
the
condition
and
provided
information
to
those
affected
and
their
family,
and
we
know
that
that
increased
knowledge
and
skills
of
any
member
of
the
Health
and
Social
Care
profession
is
really
important.
Working
with
people
with
respiratory
conditions,
so
whether
that's
in
their
the
health
setting
a
social
or
a
private
care
setting.
So
that's
why
the
the
Scottish
Government
has
provided
funding
of
one
hundred
and
twelve
thousand
pounds
to
chest.
H
Heart
and
Stroke
Scotland
to
support
the
development
of
the
online
learning
resource
recipe
which
Emma
Harper
mentioned
and,
as
she
said,
it's
a
free,
interactive
e-learning
tool
and
the
Scottish
government
is
absolutely
committed
to
improving
the
quality
of
care
in
Scotland
and
and
and
and
that's
one
one
of
the
ways
that
we're
going
to
do.
That,
of
course,
is,
as
members
are
aware,
we're
developing
Scotland's
first
ever
respite
a
clear
action
plan
for
Scotland.
So
the
aim
of
that
plan
is
to
provide
a
framework
for
action
by
health
boards
and
other
partners.
H
But
in
particular,
I
want
to
thank
the
British
Lung
Foundation
on
chest,
Heart
and
Stroke
Scotland,
who
have
represented
patients
interests
throughout
the
development
life
years
without
patient
experience
is
fully
taken
into
account
and
their
voices
are
heard
and
now
there's
been
some
thank
Monica
Lennon
you
asked.
Could
we
just
get
it
now
and
one
of
the
challenges
when
you're
trying
to
co-produce
something
is
it's?
H
E
You
I
think
the
minister
was
Ben
I'm,
not
the
most
patient
of
people,
but
what
could
I
say
to
constituents
of
Maine,
an
atlantic
shirt
and
for
Farley
health
boards?
Because
at
the
moment
the
spatial
session
support
is
all
available
and
guys
when
clades
Grampian
lordy
and
what
I
see
to
those
conceptions
Minister.
H
So,
and
in
terms
of
the
the
plan
and
as
was
said
earlier,
it
will
be
published
before
the
end
of
the
year.
Specialist
Lawson
is
one
of
the
things
I
think
is
important.
We've
that's
why
we've
given
NHS
boards
over
2.4
million
more
time
more
more
money
to
enhance
in
clinical
nurse
specialist
provision
across
Scotland.
Some
some
boards
have
used
that
to
directly
employ
other
boards
have
used
that
to
provide
training.
So
they've
kind
of
there's
been
a
bit
of
flexibility
but
I'm.
H
It
will
be
interesting
to
hear
the
feedback
in
terms
of
the
the
the
the
action
plan
when
it's
published
later
this
year
towards
the
end
of
the
year,
and
that
will
be
a
draft.
So
there
will
be
the
opportunity,
while
we've
you're,
engaged
to
the
point
of
publishing
a
draft.
A
plan
in
members
will
know
my
ability
to
listen
and
hear
the
need
for
that
to
be
further
and
amended.
So
that
will
be
a
genuine
draft
that
you
know.
H
What
will
then
hear
hear
thoughts
back
in
and
obviously
continue
to
work
with
British
firm
foundation
and
chest
Heart
and
Stroke
and
others,
and
all
that
that
both
those
organizations
brought
British
Lung,
Foundation
and
chest?
Heart
and
Stroke
Scotland
are
already
planning
how
they
will
and
make
sure
there's
additional
patient
engagement
and
when
the
draft
plan
is
published
and
I
think
that
is
really
really
important.
We're
trying
to
improve
services.
H
It
is
really
important
that
we
do
that
in
listening
to
people
who
know
best
and
that's
that
the
people
who
are
currently
using
the
services,
one
in
final
thing,
planning
officer
that
I
want
to
cover
that
was
covered
by
a
number
of
members
as
pulmonary
rehabilitation
and
cones
faith
in
Harper
and
Monica
and
I.
Think
just
so.
H
Everybody
mentioned
that
and
there's
been
a
good
good
piece
of
lobbying
around
that
and
and
right
place,
ooh,
it's
a
well
established,
evidence-based
and
and
and
and
it
clearly
shows
its
benefits
in
helping
support
self-management,
and
so
it's
already
a
key
recommendation
and
national
clinical
guidelines,
which
we
expect
NHS
boards
to
follow.
But
we
have
all
spoken
to
people
who
have
made
the
point
that
I
spoke
to
a
number
of
people
in
Angus
and
for
for
real
the
the
feeling
is
that
we
have
particularly
good
pulmonary
rehabilitation.
But
their
point
is
so.
H
Why
can't
that
be
the
same
everywhere
else
and
and
I
think
that
that's
a
good
point
on
a
very
final
point,
presiding
officer,
apologies
I,
think
it
would
be
a
mess
with
me
not
to
mention
research
and
research
is
important
and,
and
we
support
research
through
the
chief
scientific
scientists
office
and
the
Scottish
Government
for
funds.
An
active
portfolio
of
research
I
think
you
probably
in
respiratory
conditions
in
punch
above
their
weight
actually
in
terms
of
accessing
that
funding,
and
we
would
welcome
applications
for
research
and
into
I
IPF.
H
The
closing
presenting
officer
I
want
it's
opportunity
to
pay
tribute
to
all
the
staff
and
volunteers
who
work
tirelessly
in
our
NHS
to
improve
prevention,
diagnosis,
treatment
and
support
for
people
with
all
lung
conditions.
And
finally,
if
I
can
give
a
huge
thanks
to
Colin
about
the
gain
for
lodging
the
motion
for
this
important
debate.
Thank
you.
Thank.