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A
Thank
you.
The
next
item
of
business
and
the
final
item
business
is
a
member's
business
baton,
boys
from
1/8
408
in
the
name
of
miles
Briggs
on
Chasse
keeping
the
joy
alive.
Mr.
B,
it
will
be
concluded
without
any
questions
being
asked.
Those
members
who
wish
to
speak
Leiby,
please
press
to
requests
to
speak
buttons
down
our
column,
miles
breaks
to
open
the
debate.
Mr.
Briggs,
please
Thank.
B
We
owe
them
a
huge
debt
of
gratitude
for
what
they
do,
for
our
constituents
and
for
families
we
represent
here
in
the
parliament.
Chas
works
right
across
the
whole
of
Scotland,
it's
to
hospices
at
Robyn
house
in
Bala,
and
also
Rachel
House
Inc
in
Ross.
Our
centres
of
excellence
in
care,
providing
both
respite
and
end-of-life
care
and
support.
B
I
was
delighted
to
visit
Robyn
house
last
month
with
my
colleague,
Morris
Khoury,
having
previously
visited
Rachel
House
on
a
number
of
occasions
before,
and
it
was
a
great
honor
to
meet
the
staff
there
and
again
see
the
huge
difference
they
are
making
to
families
and
writing
the
speech
tonight.
I
was
thinking
about
a
word
to
describe
both
Robyn
house
and
Rachel
house
and
I.
B
Last
year
alone,
Robyn
Rachel
House
were
able
to
provide
more
than
two
12,200
overnight
stays
for
children
and
families,
and
the
chairs
at
home
team
provided
care
and
support
in
homes
across
all
regions
of
Scotland,
including
our
remote
rural
and
island
communities,
with
bases
in
Inverness,
Aberdeen,
Ballack
and
Kinross.
Chas
also
has
specialist
teams
within
hospitals
across
Scotland
with
dedicated
consultants,
nurses
and
Chas
Diana.
B
Children's
nurses
delivering
care
in
Glasgow,
Edinburgh,
Aberdeen
and
Inverness
here
in
my
own
region
of
Lothian
Chas
makes
a
huge
contribution
to
local
families,
supporting
neonatal
memory-making
at
the
Simpson
Center,
and
also
part
funding
a
consultant
neonatologist
there
as
well
Chas
has
formed
a
major
new
partnership
with
a
Royal
Hospital
for
Children
in
Glasgow,
with
a
new
pediatric
supportive
and
palliative
care
team
they're
entirely
funded.
Now
by
chars
as
well.
B
Specialist
nurses
are
working
alongside
a
consultant
in
pediatric
palliative
medicine,
to
share
specialist
knowledge
and
improve
care
for
children
who
are
likely
to
sadly
die
young
and
to
therefore
ensure
that
the
intensive
support
their
families
need
is
I
did
the
aim
is
to
ensure
that
children
with
palliative
care
needs
and
their
families
experience
consistently
high
quality
care
and
support?
Definitely
presiding
officer,
as
my
motion
states
this
evening,
the
number
of
babies,
children
and
young
people
in
Scotland
aged
between
0
and
21,
who
have
life-shortening
conditions.
It's
currently
almost
16,000,
and
this
number
is
increasing.
B
Chas
is
already
supporting
over
to
465
of
these
babies
and
children,
a
25%
increase
over
the
past
five
years
and
for
every
child
they
see
they
also
an
average
are
supporting
five
family
members
as
well.
Last
year,
1205
visits
were
made
by
Chaz's
at
home
service.
Again
a
30%
increase
over
the
past
five
years
and
has
provided
support
to
80
for
families
who,
whose
babies
children
our
young
people
had
sadly
died.
Last
year,
Chaz's
864
volunteers
donated
an
incredible
fifty
nine
thousand
three
hundred
ten
hours
to
children
and
families.
B
They
have
collectively
raised
over
a
quarter
of
a
million
pounds
for
chairs
since
2015,
which,
as
I
think
all
members
would
agree,
is
a
fantastic
achievement
and
for
every
1
pound
of
statutory
funding
giving
to
help
support
the
services
Chas
provide
the
estimated
economic
return
on
the
service.
Investment
is
5
pounds,
12
pence
and
in
indication
of
just
how
much
value
Chas
provide.
If
there
is
one
thing
I
know,
members
across
the
chamber
will
agree.
B
It
is
that
Chas
doesn't
ever
rest
on
its
laurels,
but
is
continuously
developing
new
ideas
and
initiatives
to
help
young
people
and
their
families
across
Scotland.
Their
new
home
volunteer
service
sees
volunteers,
visit,
ill
children
at
home
and
in
the
first
year
of
this
service
alone,
volunteers
made
115
home
visits
and
I
was
really
impressed
here.
B
The
plans
they
have
to
expand
this
service
Chas
is
also
focusing
on
providing
support
to
the
siblings
of
children
with
life
limiting
conditions,
and
their
support
has
been
invaluable
to
dozens
of
brothers
and
sisters
of
seriously
ill
children
across
our
country.
I
want
to
close
this
evenings
debate
by
again
thanking
all
of
those
who
work
for
and
volunteer
for
Chas
for
everything
that
they
do
to
support
families
across
our
country.
Their
contribution
to
individuals
in
need
and
their
wider
palliative
care
sector
in
our
country
can
never
be
overestimated.
B
A
C
Thank
You
I
commend
my
OHS
brakes
and
bringing
this
motion
to
the
chamber
for
to
be
and
I'm
delighted
to
make
a
small
contribution.
Then
it
also
expressed
my
admiration
and
gratitude
to
everyone.
I
chose
for
all
of
these
is
to
keep
the
joy
alive
for
children
and
young
people
with
life-threatening
conditions
and,
of
course,
for
their
families
Chai's.
C
So
the
impact
is
significant
and
it's
not
just
what
is
provided
at
Robyn
house
in
Rachel
House.
It's
also
has
home
service
which
a
lot
people
don't
know
about,
and
race
by
and
in
turf
life
here
and
the
horse
position,
which
is
also
important
and
all
other
calls,
will
talk
about
their
their
time
by
the
thing
Robyn
house
in
Rachel
house.
C
But
when
I
was
the
I
was
just
so
bored
over
by
just
how
homely
it
is,
and
so
colorful
and
so
welcoming
and
enjoys
a
lovely
meal
with
some
staff
and
volunteers,
but
from
the
large
hydrotherapy
pool
to
the
beautiful
gardens
which
are
accessible
for
everyone
and
just
the
opportunity
to
have
fun
and
to
play
and
to
relax
and
to
have
quiet
time.
If
you
need
to
I
was
especially
moved
by
the
the
alias
for
reflection
and
the
support
in
terms
of
bereavement
and
the
care
that
is
given.
C
It's
just
that
a
place
that
is
filled
with
love
that
in
boredom
and
so
when
people
wondered
about
where
their
donations
go.
That
in
Bodrum
is
probably
a
really
good
example
to
get,
but
families
can
use
their
facilities
and
the
hospice
from
the
day
that
a
child
dies
until
the
day
of
the
funeral.
But
child
needs
over
2
million
pounds
a
year
to
keep
robbing
hosts
operational
and
that's
over
and
above
the
statutory
funding
that
comes
from
the
Scottish
Government.
C
So
it
takes
a
lot
of
time
and
effort
and
money
to
provide
these
services
and
tries
can't
do
that
without
therefore
one
tears
they
have
over
100
active
volunteers
who
do
amazing
and
fantastic
work.
So
today
is
an
opportunity
for
all
of
us
in
the
chamber
to
see
a
big
THANK
YOU
to
them
and
I
know,
there's
going
to
be
the
reception
tonight
and
the
garden
Lobby,
which
I'm
sure
we
will
attended
when
I
go
home
at
night.
C
I
know
I'm
greeted
by
a
beautiful
colorful
plant
pot,
which
has
my
name
on
it,
which
was
a
gifts
from
the
team
which
has,
and
it's
lovely,
to
see,
I'm
doing
my
base
till
the
kaftan
up,
stating
officer
sort
of
ugly
track
record
with
plants,
but
it
is
lovely
when
I
come
home
from
often
quite
a
busy
long
stressful
day
to
see
that-
and
it
just
reminds
me
of
the
joy
and
the
magic
at
choice.
I
want
to
see
a
big
thank
you.
C
C
So
think,
there's
a
lot
more
that
we
can
do
to
raise
that
awareness
and
to
make
sure
that
they
Theatre
that
we
have
in
Scotland,
probably
the
best,
and
there
was
I'm
getting
some
nods
from
the
public
gallery
that
we
use
that
to
maximum
effect
to
make
sure
that
across
the
NHS
and
then
the
community
that
we
know
exactly
what
children
and
young
people,
whether
lay
shortening
illness.
These
needs,
and
we
can
tell
you
to
be
a
champion
for
a
child
in
Parliament.
A
D
Thank
You
presiding
officer,
I'm
also
very
pleased
to
be
Nicole
to
speak
in
this
debate,
and
I
would
wish
to
congratulate
miles
Briggs
on
securing
the
debate
this
evening
and
at
the
outset,
I
too
would
wish
to
pay
tribute
to
the
chair
staff
and
volunteers
who
do
a
remarkable
job
and
deserve
indeed
our
heartfelt
thanks,
and
it
is
worth
noting
again.
They
did
quite
remarkable
fact
that
there
are
currently
some
864
volunteers
who
have
donated
around
fifty
nine
thousand
three
hundred
and
ten
hours
to
the
children
and
family
supported
by
Charles
across
Scotland.
D
That
really
is
a
truly
remarkable
statistic.
Presiding
officer
and
I
would
also
like
to
pay
tribute
to
all
those
who
fundraise
for
Charles
the
length
and
breadth
of
the
country
and
at
all
times
of
the
year
and
for
example,
just
recently
in
my
own
constituency
of
cotton
beef.
There
was
a
short
case
where
we
saw
the
current
beef
and
the
sunset
spirit
playing
and
donating
their
time
to
chance.
D
So
well
done
to
them,
and
indeed
it
is
perhaps
difficult
to
think
of
a
charitable
organisation
which
inspires
such
determined
and
loyal,
fundraising
and
which
is
so
universally
supported
by
the
generosity
of
the
public.
Jazz
indeed
has
developed
over
and
evolved
over
the
years
with
the
hospices
in
Kinross
and
and
Bauer,
and
at
the
same
time
we
have
seen
chance
develop
their
outreach
service
Charles
at
home,
which,
in
the
past
year
of
operations
all
volunteers
make.
As
has
been
mentioned.
D
D
Charles
have
also
developed
a
new
children's
consultant
post
in
NHS
Grampian,
and
they
have
expanded
their
network
of
Charles
Diana
children's
nurses,
with
new
posts
based
in
Aberdeen
and
in
Inverness
I,
to
welcome
the
groundbreaking
partnership
of
paediatric
supportive
and
palliative
palliative
care,
which
has
seen
a
team
established
at
the
Royal
Hospital
for
Children
in
Glasgow,
providing
direct
care
and
building
links
with
other
Child
Services
presiding
officer.
These
developments
very
much
fit
with
Charles's
overarching
ambitions
set
out
in
its
current
three-year
strategic
plan,
which
is
to
reach
every
family
in
Scotland
that
needs
them.
D
Pleased
to
note,
in
that
regard,
presiding
officer,
that
Charles
has
precise
a
recent
call
to
arms
to
high
schools,
including
in
my
constituency
of
cotton
beef,
to
ask
young
people
who's
in
senior
years
to
consider
also
becoming
volunteers.
I,
think
that
is
commendable
initiative
and
I'm
happy
to
help
raise
awareness
of
that
this
evening,
and
indeed,
as
a
member
representing
a
five
constituency,
tis
good
to
see
that
in
Fife,
a
Kier
24
team
has
been
established
in
partnership
with
NHS
Fife
to
support
families
with
overnight
care
at
the
end
of
life
of
a
child.
D
Also,
the
child
at
home
services
operational
in
five
and
a
medical
partnership
is
an
operation
with
NHS.
Five
presiding
officers
are
many
other
initiatives
underway,
but
time
constraints
obviously
tonight
do
not
permit
a
detailed
examination
of
these.
Suffice
to
say
that
chance
continues
to
evolve
and
to
innovate
for
the
benefit
of
thousands
of
children
and
families
across
Scotland.
This
organization
has
only
been
going
for
about
25
years
in
its
current
form,
but
its
stature
is
such
that
it
is
difficult,
if
not
impossible,
to
imagine
life
in
Scotland
without
it.
D
E
You
and
I
cannae
to
thank
miles
Briggs
for
securing
us
to
be
tonight
and
April.
2018
I
was
fortunate
enough
to
receive
an
invitation
to
visit
Robin
house
and
valor
and
I
was
aware
of
the
work
of
chairs
and
probably
like
most
people
apprehensive
of
going
to
a
Children's
Hospice.
The
worked
hospice
can
evoke
sad
and
negative
thoughts
and
deadly
to
presiding
officer.
I
couldn't
have
been
more
wrong.
E
The
first
temptation
that
strikes
you
when
you
arrive
at
Robin
house
is
the
setting
calm,
quiet
and
surrounded
by
peaceful
countryside
and
inside
the
house,
as
it's
known
is
a
warm,
loving,
colorful
and
positive
environment
families
support
their
loved
ones,
24/7
and
two
half-hour
respite
support,
either
planned
or
emergency
as
essential
for
families.
With
our
life
limiting
child
to
function.
The
hospice
provides
space
for
the
family
to
be
just
that.
A
family
char's
offers
a
sense
of
normality,
and
such
Kieren
DTO
goes
into
the
preparation
for
the
family,
sleep
from
having
the
child's
favorite
character.
E
Duvet
cover
to
the
toy.
They
have
favored.
In
previous
visits
with
family
photographs
adorning
the
bedroom
walls,
there
is
a
real
sense
of
whom
parents,
carers
and
siblings
are
not
forgotten.
Either
there
are
quiet,
family
rooms
of
the
tale
standard
looking
out
into
the
countryside.
Every
detail
thought
through
with
the
knowledge
that
there
are
medical
professionals
with
them,
so
they
can
have
a
proper
night's
sleep.
They
can
relax
rest
and
mentally
switch
off.
Making
Memories
is
high
priority
for
the
families
of
life-limiting
children
and
essential
for
their
healing.
E
When
that
inevitable
time
comes
specially
adapted
therapy
rooms
that
included
in
Robin
house
the
state-of-the-art
music
room,
the
biggest
hydrotherapy
pool
I,
have
ever
seen
the
messy
playroom
and
the
all-important
sensory
room.
These
are
experiences
that
cannot
be
offered
at
home,
and
such
state-of-the-art
facilities
leads
to
significant
costs
and
charge
does
rely
heavily
on
public
support
to
maintain
network.
Essential
funds
must
be
raised
on
a
continual
basis
to
allow
both
houses
to
function.
E
I
also
learned
the
importance
of
volunteering
to
both
chastises
from
the
volunteer
gardeners
to
the
chef's,
the
play
therapist
to
the
holistic
counselors
all
willingly
giving
their
personal
time
to
me.
Each
family's
tea
at
the
house
a
special
experience
and
reflecting
on
my
afternoon
at
Robin
house.
It
reminds
me
that
making
the
most
of
short
and
precious
lives
as
paramount
and
that,
above
all,
it's
important
to
each
and
every
family
and
equally
to
the
staff
members
and
to
the
volunteers
of
char's.
E
Families
are
safe
in
the
knowledge
that
they
will
be
supported
through
what
will
be
the
darkest
moments
of
their
lives
and,
if
I'm,
a
deputy
presiding
officer
finished
by
quoting
a
parent,
Lorna
Corbett
mum
to
se.
Victoria
hospices
are
not
hospitals
and
for
some
families
they
are
a
second
home.
They
are
there
to
support
families
and
to
make
memories
to
be
a
shoulder
to
cry
on.
As
you
navigate
an
impossible
path,
we
need
to
remove
the
fear
and
show
how
much
they
are
places
that
are
full
of
life.
A
F
Thank
You
deputy
presiding
officer
loudly
aye,
my
congratulations
to
my
colleague,
Mills
Briggs,
for
bringing
this
debate
to
the
chamber
and
now
allowing
us
to
to
talk
warmly,
but
the
choice
does
have
been
a
way
of
jazz
as
an
organization
for
quite
some
time
poll
and
create
a
superficial
level.
I
you
know,
I
was
a
wheel
used
to
run
a
charity
golf
days
which
I
used
to
get
an
invitation
along
the
play,
a
celebrity
golf
team
and
meet
our
friends.
We
have
a
being
wrong.
F
We
have
a
good
shop
on
the
lines
and
and
part
of
that.
That
process
is
when
we
get
a
2-3
minute
presentation
during
that
where
somebody
from
Charles
would
let
us
know
what
they,
what
the
charity
does
in
that
short
space
of
time,
and
we
would
always
say
what
what
fantastic
charity
that
is
great,
we're
happy
to
support
that
and
then
off
we
go
home.
It's
only
when
you
come
into
a
and
into
this,
let's
rule
here,
then
we
get
the
opportunity
to
actually
dig
a
little
bit
deeper
into
to
what
these
charities
actually
doing.
F
F
In
my
case,
because
that's
how
old
I
am
we
guess
you
know
it's
an
unimaginable
situation
that
parents
and
families
are
finding
themselves
and
that
you
walk
through
that
room,
and
you
see
the
the
you
know
you're
imagining
this
as
a
real
dark
place
in
terms
of
terms
of
feelings,
but
it's
so
bright.
Everybody's
talked
about.
You
know
that
the
Hydra
probably
talked
about
the
cause
and
the
walls
and
the
paintings
and
the
play
and
the
music
is
such
a
fantastic,
a
fantastic
place
to
be
it
time
and
the
gut
and
in
the
garden.
F
F
I
think
if
anything
incredibly
difficult,
but
at
that
idea
of
releasing
a
butterfly
in
the
garden
to
trying
to
keep
to
keep
those
memories
alive.
I
think
is
incredibly
incredibly
moving.
Incredibly
important.
I
know
that
the
work
done
by
the
staff
and
volunteers
at
the
hospices
is
both
utterly
vital
and
often
hugely
challenging.
I'm
supporting
someone
is
their
health
declines
and
the
end
of
that
last
days
of
their
life
contain
real
tall,
never
more
so
than
when
that
kind
of
palliative
care
is
needed
by
the
young.
F
All
deaths
are
tragic
that
perhaps
none
more
so
than
the
death
of
someone
who
hasn't
had
much
time
to
experience
life
males
Beggs
motion
talks
a
bit
Chaz's
mission
to
keep
the
joy
alive
and,
from
my
own
experiences
of
visiting
robin
house,
I've
just
seen
how
hard
they
work.
They've
been
joy
to
everyone
who
comes
through
the
doors
we
talk
about
making
people
with
life-shortening
conditions
comfortable
in
their
final
days.
In
most
cases,
that's
about
making
someone
physically
comfortable,
treating
their
symptoms
and
managing
their
pain.
F
But
sometimes
you
don't
think
enough
about
the
mental
comfort
of
people
with
life-threatening
conditions
and
their
families,
and
that's
why
I
chose
his
mission
to
keep
the
joy
alive
is
so
important
is
when
we're
going
through
something
painful
that
moment,
some
joint
fun
precious
and
we
can
make
the
most
difference
that
sense
of
hope
that
little
remainder
they
even
when
things
feel
unendingly
dark.
There
can
still
be
some
way.
F
So
if
I
could
finish
by
once
again
thanking
in
males
beg
for
bringing
this
debate
to
the
chamber,
loving
us
to
thank
ties
and
other
charities
supporting
those
in
such
difficult
communities
and
our
for
all
the
staff
and
volunteers
working
for
char's
our
continued
admiration
and
support
and
look
forward
to
visiting
them
again
soon
keeping
the
joy
alive.
What
a
very
apt
title
for
this
debate.
Thank.
G
Thank
you
very
much
presiding
officer,
and
let
me
start
by
congratulating
Myles
Briggs
on
securing
this
debate.
I
am
very
proud
that
Robin
house
is
in
my
constituency
and
I
am
always
happy
when
colleagues
come
to
visit,
my
beautiful
patch,
the
motto
that
Chaz
has
that
the
core
of
their
mission,
keeping
the
joy
alive
perfectly
sums
up.
G
In
my
view,
the
incredible
work
that
they
carry
out
day
in
and
day
out,
the
exceptional
level
of
care
and
support
that
staff
and
volunteers
at
these
hospices
provide
to
the
children
and
young
people
and
to
family
members
to
really
is
second
to
none.
I
know
from
my
visits
to
Robin
house
that
families
value
the
support
that
they
receive.
G
What
can
be
an
incredibly
difficult
time,
many
of
the
children
have
quite
severe
life
limiting
conditions,
and
you
can
only
begin
to
imagine
the
impact
that
that
would
have
on
their
families,
but
you
would
be
mistaken,
as
many
of
the
members
have
said
this
evening,
if
you
think
of
Robin
house
as
the
sad
place,
it's
actually
quite
the
opposite.
The
minute
you
walk
through
the
door.
G
You
hear
peals
of
laughter,
it's
bright,
its
positively
bursting
with
energy
and
joy,
and
it's
the
staff
and
volunteers
that
create
that
culture,
and
it
is
wonderful
to
experience
now
for
25
years
now,
Chow's
have
been
supporting
babies,
children
and
young
people,
with
both
end-of-life
care,
emotional
and
physical
therapy
and
education
about
life-shortening
illnesses
that
they
have.
It
hasn't
always
been
easy.
There
have
been
funding
problems
in
the
past.
These
are
largely
not
quite
behind
you,
but
more
settled
and
moving
forward.
G
You
can
always
do
with
more
money,
but,
as
Myles
pointed
out
Myles
Briggs
pointed
out,
there
are
currently
16
thousand
babies,
children
and
young
people
in
Scotland
living
with
life-shortening
conditions,
so
the
facilities
on
offer
to
these
children
at
Robyn
house,
as
well
as
Rachael
house
in
Kinross,
really
do
make
all
the
difference
for
them
and
their
families.
Let
me
mention,
as
others
have
done,
the
specialist
swimming
pool
at
Robyn
house.
It
is
a
wonderfully
sauna
like
environment,
very
warm
and
cozy.
G
It
resounds
to
the
splashes
of
children
playing
in
the
pool
that
is
suited
to
their
needs
with
relaxing
physiotherapy
and
absolutely
stunning
views
across
the
countryside
and
the
garden.
The
garden
at
Robyn
house
is
fantastic.
I
know,
Mary
free
has
covered
many
of
the
services
available
at
Robyn
house.
I
want
to
focus
on
the
garden.
The
last
time
I
was
there.
I
was
planting
trees
and
bushes,
with
Patrick
caffee
who's,
not
in
the
chamber
this
afternoon,
his
mum
Rose
volunteers
there,
so
he
was
press-ganged
into
going
along.
G
I.
Remember
when
Charles
decided
to
establish
a
hospice
at
Robin
Robin
house,
we
had
a
little
local
difficulty
with
planning,
but
we
overcame
that
obstacle.
All
I
can
think
of,
though,
is
the
extent
to
which
all
of
my
constituents
in
Dumbarton,
the
Vale
of
Leven
and
Helen's
bura,
went
into
fundraising.
Overdrive.
I
have
never
been
to
so
many
bake
sales.
Tom
bolas
donated
sermon
bottles
of
Scottish,
Parliament
whisky
or
sponsored
so
many
people
in
my
life,
but
it
was
all
truly
in
a
great
cause
and
on
that
note,
that
fundraising
continues.
G
The
chief
executive
of
Western,
Berkshire,
Council,
Joyce
white,
is
about
to
trek
across
the
Sahara
for
chance.
I
would
encourage
the
chamber
to
sponsor
her
less
kind.
People
are
whooping
shall
be
there
for
a
while,
but
I
wouldn't
dream
of
saying
that,
whether
it's
the
hospices,
hospices
in
bowel,
ethical,
Kinross
or
the
home
care
service,
Chaz's,
valued
support
and
care
reaches
every
corner
of
the
country
for
every
child.
G
H
You
officer,
firstly
on
behalf
of
the
Scottish
Government
I'd,
like
to
add
my
welcome
to
colleagues
from
Charles
and
some
of
the
families
who
are
supported
by
Charles
to
the
chamber
this
afternoon.
Most
like
to
add
my
thanks
to
my
legs
and
congratulations
to
Mel's
brakes
for
securing
and
this
this
debate
in
the
chamber
this
evening
and
to
colleagues
across
the
chamber
for
the
thoughtful
and
considered
a
considered
contributions
to
the
debate.
H
Char's
fulfil
a
unique
role
in
supporting
children
and
young
people
with
life,
limiting
conditions
and
also
in
supporting
the
families
and
friends
around
them.
We've
heard
from
colleagues
across
the
chamber
about
the
the
deference
that
charged
us
made
to
some
of
their
condition
conceptions
how
Charles
has
kept
the
joy
alive
for
families
when
they
felt
at
their
lowest
and
various
Star
and
miles
and
Briggs.
In
said,
he
was
trying
trying
to
find,
find
the
world
and-
and
my
colleague
Marie
told
the
children's
Minister,
he
hasn't
been
able
to
stay
and
has
passed
a
note.
H
Her
thoughts
of
what
an
appropriate
world
would
be
for
to
describe
Rachel
and
Robin,
indeed
Charles
in
general,
and
she
sums
up
just
as
joy
and
when
she
visited
she
expected
to
find
compassion,
empathy
and
incredible
expertise
which
of
course
she
did
find.
But
she
doesn't
expect
to
find
the
the
fun
and
and
spent
a
time
playing
and
singing.
And
she
sums
up
saying
pure
joy
and-
and
it
has
been
really
important
to
hear
the
kind
of
I'm
going
to
just
remind
us
of
some
of
the
comments.
And
so
when
male
miles
regs
was
talking.
C
You
Minister,
well,
you
were
speaking
and
I
was
reminded
of
conversations
and
my
residents
who
Robin
house
and
one
of
the
issues
that
stayed
with
me,
is
the
financial
impact
on
families,
particularly
if
there
are
lower
income
family,
and
we
know
that
health.
And
of
course
he
says
that
as
a
big
issue
in
Scotland.
So
I
just
wonder.
H
And
we
have
a
very
good
relationship
with
Charles
as
an
organization
that
we
see
ourselves
working
with
as
partners
and
I
think
that's,
that's
a
really
good
and
a
good
way
to
continue
continue
working
and
we
officials
and
Charles
are
and
I
think
frequently
getting
around
the
table
to
make
sure
that
we're
doing
everything
we
can
to
complement
each
other's
roles
and
and
and
what
we
can
add
into
this
area.
They're.
H
The
type
of
skilled,
compassionate
care
that
we
see
being
delivered
by
Charles
is
it's
more
important
now
than
ever,
and
the
children
in
Scotland's
requiring
a
palliative
care
report
chest
and
notes.
The
demand
for
such
services
is
increasing,
particularly
in
deprived
areas,
which
I
think
comes
to
the
point
that
Monica's
look
seeing
and
as
I
think
Monica
mentioned.
Monica
wailing
SWAT
I
mentioned
in
in
her
contribution
and
that
data
produced
by
chars
is
is
recognized
as
as
some
of
the
best
quality
data
in
the
world.
H
So
again,
it's
really
important
that
we
have
that
in
the
data.
So
we
can
have
these
conversations
and
thanks
again
to
charge
for
for
in
producing
that
Scotland
I.
Think,
though,
is
already
work.
Reading
in
the
field
of
palliative
and
end-of-life
care
and
I'm
proud
of
the
progress
that
we've
made
over
the
past
few
years,
we've
increased
numbers
of
special
staff
and
are
continuing
to
improve
access
to
services
and
through
our
program
of
Health
and
Social
Care
integration
operating
services
under
the
control
of
local
communities.
H
Since
the
publication
of
the
framework,
we've
undertaken
much
more
work
to
improve
the
care
available
for
young
people
with
palliative
care
needs
and
their
families,
and
we
remain
committed
to
ensuring
that
everyone
who
needs
part
of
care
can
access
it
by
the
end
of
this
Parliament.
That's
why
we've
given
a
particular
focus
to
specialist
children's
palliative
care
services?
2017,
we
announced
an
investment
in
children's
part
of
care
of
30
million
Pines
over
five
years
up
to
2021.
H
That
investment
was
welcomed
by
Charles
and
has
been
helpful
in
expanding
children's
part
of
the
palliative
care
services
to
help
ensure
that
all
families
have
access
to
high-quality
palliative
care
and
end-of-life
care,
regardless
of
where
the
11
members
and
we'll
also
be
aware.
The
earlier
this
year
we
launched
the
pediatric
end-of-life
care
national,
managed
clinical
network
or
Pelican
hosted
by
NHS
national
services
Scotland.
H
This
network
is
designed
to
improve
access
to
high
quality,
person-centered
and
family
late,
end-of-life
and
care
for
babies,
children
and
young
people
with
a
life
limiting
condition
who
are
unstable,
deteriorating
or
dying.
Charles
has
long
supported
the
idea
of
this
network
and
what
closely
with
Scottish
government
officials
on
NHS
NSS
from
the
outset
to
shape
the
work
to
ensure
it
meets
the
needs
of
children
and
families
across
Scotland,
thanks
in
no
small
part
to
the
work
of
Charles,
the
network
is
now
in
place
and
recruitment
has
commenced
on
key
clinical
possessions.
H
Are
we
forward
to
seeing
how
that
work?
It
progresses
over
the
coming
months?
Although
the
Pelican
network
will
be
helpful
in
linking
clinical
services
and
sharing
learning
across
the
country,
we
still
need
services
to
work
in
partnership
with
each
other
to
provide
high
quality
care
and
support.
However,
to
achieve
this
vision,
it's
essential
that
we
create
the
right
conditions
nationally
to
support
local
communities
in
their
planning
and
delivery
of
services
to
help
ensure
that
the
particular
needs
of
local
communities
are
best
made.
This
ethos
is
at
the
heart
of
Health
and
Social
Care
integration.
H
Integration
authorities
are
working
with
local
communities
and
building
on
the
expertise
of
organizations
like
chars
to
plan
and
commission
services
that
are
designed
to
meet
the
needs
of
their
local
communities
by
commissioning
services.
In
this
way,
service
improvements
will
be
driven
through
meaningful
collaborative
partnerships
with
the
wider
palliative
and
end-of-life.
You
knew
and
Annabel
Ewing
I
think
mentioned
just
how
important
those
partnerships
are
to
success
by
commissioning
services.
H
Sorry
Charles
is
already
in
engaging
with
integrated
authorities,
integration
authorities
and
working
in
partnership
with
Health
and
Social
Care
involved
sectors
to
make
the
most
of
every
opportunity
to
improve
the
delivery
of
an
access
to
children's
palliative
care
across
goand.
In
short,
Charles,
what
is
a
great
example
of
the
principle
of
Health
and
Social
Care
integration
and
practice
in
closing
presiding
officer,
I'm
grateful
to
Chaz
for
their
invaluable
work
and
I'm,
optimistic
that,
through
our
combined
efforts
and
continued
partnership,
working
will
bring
about
further
improvements
in
children's
palliative
and
end-of-life
care.
H
Chaz
aims
that
to
ensure
that
every
baby,
child
and
young
person
who
needs
palliative
care
whatever
wherever
they
are,
can
access
it
well
where
and
when
they
need
it
and
I'm
sure
that's
an
aim,
but
we
all
share
and
I
look
forward
to
working
with
chars
and
others
around
the
chamber
for
many
years
to
come.
Thank
you
thank.