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From YouTube: Boston Children's Hospital 150th Anniversary Celebration
Description
The top pediatric hospital in the world is turning 150! Mayor Walsh joins Boston Children's Hospital CEO Sandi Fenwick, Associate Physician-in-Chief Fred Lovejoy, MD, along with several former patients and the their families, at the 150th Anniversary Celebration of Boston Children's Hospital.
A
A
Listen
to
these
words,
attainment
and
diffusion
of
knowledge
regarding
diseases
of
children
and
training
of
young
women
in
the
duties
of
nursing,
yay
women
were
they
prescient?
Were
they
pioneers?
Were
they
architects
of
a
culture
that
absolutely
would
never
say,
never
I
would
say
absolutely
and
when
you
think
about
it,
care,
research,
education
and
community.
A
Since
the
founding
of
this
hospital
150
years
ago,
from
the
initial
pledge
in
1869,
quote
care
treatment
and
cure
for
the
children
of
Boston,
we
have
worked
tirelessly
to
provide
a
better
world
for
kids,
kids
back
then
and
kids
today,
and
we
know
for
kids
tomorrow
for
all
the
twists
and
turns
that
our
history
has
taken
and
our
story
unfolds
since
nineteen
since
1869.
The
one
thing
that
has
truly
never
changed
is
the
commitment
of
the
people
who
have
been
not
only
here
from
the
beginning,
but
also
the
people
who
are
here
today.
A
It's
that
commitment
that
really
makes
this
place
a
very,
very
special
place.
It's
the
commitment
of
the
people
of
Boston
who
come
here
and
have
been
here
and
then
stay
here,
because
they
want
to
make
a
difference.
They
want
to
know
that
they
will
have
impact.
They
want
to
go
home
at
night
or
stay
here
all
night
and
know
that
they
are
making
a
difference
in
the
lives
of
children,
not
just
children
today,
but
the
children
that
will
come
before
us
that
have
come
before
us
and
that
will
go
before
us
into
the
future.
A
John
Adams.
Once
said,
there
are
two
types
of
people
in
this
world:
those
with
commitment
and
those
who
require
the
commitment
of
others,
the
story
of
our
first
hundred
and
fifty
years,
and
hopefully
the
story
of
our
next
hundred
and
fifty
is
really
about
those
two
types
of
people
for
150
years
families
families
have
come
from
around
the
world,
seeking
answers,
seeking
treatments
and
hopefully
seeking
cures.
They've
come
because
of
our
commitment,
our
commitment
to
care
for
them
as
if
they
were
our
own
to
give
them
hope.
A
We
will
never
stop
searching
until
we
have
an
answer
until
we
have
a
treatment
or
a
cure,
and
so
for
a
hundred
and
fifty
years,
Boston
Children's
has
been
home
to
those
nurses
that
were
described
and
the
doctors
described
and
the
teachers
that
were
described
in
those
early
words,
scientists,
caregivers
and
all
of
the
wonderful
people
who
support
them.
Thousands
upon
thousands
of
people
who
have
come
through
this
institution
who
are
here
today
and
who
we
know
have
been
here
rising
to
the
challenge
that
families
and
children
have
brought
to
us.
A
A
This
book
will
be
launched
and
many
of
you
will
be
in
it
and
but
today,
since
we
don't
have
the
time
to
go
back
to
talk
about
the
present
or
to
really
talk
about
where
we're
going
for
the
future,
there's
no
one
better
than
the
patients
or
families
who
have
been
through
this
place.
Who
can
describe
what
their
journey
has
been
like
coming
through
Boston
Children's
and
when
we
leave
this
place
and
we
watch
children
leave?
B
Thank
You
sandy
and
I
want
to
thank
everyone
here
at
Children's,
happy
anniversary,
it's
it's
an
honor
for
me
to
be
standing
here
today.
It's
funny
I
was
I,
was
there's
been
a
long
week
and
I
was
just
saying
to
Sandy.
We've
had
a
lot
going
on
and
said
the
city
just
good
stuff
and
crazy
stuff
and
life's
tough
and
it
didn't
hit
me
till
I
walked
through
the
doors
here.
B
What
really
matters
life
goes
on
and
we
all
have
ups
and
downs
and
tough
days
and
good
days
and
bad
days,
and
then,
when
I
hit
the
when
I
hit
the
door
and
I
saw
sandy
I
realized
that
what
really
matters
is
sometimes
we
get
so
crazy
about
things
that
really
don't
matter,
and
so
it's
an
honor
to
be
here
today,
I'll
get
more
into
that.
I
want
to
thank
and
congratulate
all
the
doctors
and
the
nurses
and
the
patients,
the
staff,
the
maintenance,
folks,
the
valets
everyone
that
has
anything
to
do
with
this
hospital.
B
B
Think
that
that's
the
emergency
room
that
I
went
into
in
1974
I
was
sick,
it
wasn't
I
was
tired,
I
was
I,
was
laying
down,
I
was
losing
weight,
and
my
mother
took
me
to
Children's
emergency
room
one
night
and
they
thought
I
think
they
thought
it
was
appendix.
So
they
kind
of
sent
me
home
and
you
know,
keep
an
eye
and
come
back
and
the
next
night
I
had
pain
again
they
brought
me
and
they
realized
that
it
was
wasn't
in
appendix
it
was
something
much
more
than
that.
B
Few
days
later,
or
whatever
time
was
afterwards,
they
did
surgery
and
they
found
out
that
I
have
a
mass.
In
my
stomach,
I
was
seven.
I
was
not
the
normal
seven
year
old,
because
I
wasn't
playing
the
way.
I
should
be.
I
was
tired,
all
the
time
and
what
they
did
was
they
they.
They
basically
did
exploratory
surgery.
They
closed
me
up
and
they
said
to
my
mother
and
father.
You
have
an
option
couple
options.
B
You
know
is
that
the
Children's
Hospital
before
some
of
the
new
buildings
that
are
here
in
the
new
buildings
that
are
coming,
didn't
quite
understand
because
it's
a
kid,
you
don't
really
understand
the
magnitude
of
how
sick
you
are,
but
the
experience
is
I.
Remember
I,
remember
very
clearly,
I,
remember
all
of
a
lot
of
the
procedures
that
the
doctors
did
on
me
and
I'd
like
to
thank
doctor
mountain
man,
Foss
burn.
B
It
was
a
doctor
in
this
hospital
I
think
he
retired
and
became
a
farmer
up
in
Maine,
so
I
heard
last
doctor
Cassidy,
he
was
in
radiation,
I,
believe
and-
and
he
was
one
of
the
team
that
worked-
that
they've
gone
the
second
floor
in
the
old
building.
You
go
up
the
stairs.
It's
the
old
building,
I,
remember
being
in
his
place.
Lining
me
up
for
the
for
the
dots
for
the
radiation,
the
nurses,
I,
don't
have
all
the
names
and
the
people
that
that
my
family
had
a
chance
to
come
across
experience.
B
Father
McCarthy
was
a
chaplain
here
at
the
hospital,
and
he
had
come
in
to
me
and
and
visit
me
in
the
room
and
visit
other
kids
back
in
the
day
that
we
was
on
a
division.
24
had
an
eight-room
Ward
division,
28
had
a
four-room
ward
or
two
room
or
door
a
one-room
Ward
and
you
didn't
want
to
be
in
the
one
room.
One
I
didn't
realize
that
at
the
time,
I
was
in
the
one
room.
What
I
was
in
there,
because
I
had
double
pneumonia
and
and
I
was
weak.
B
All
of
those
things
when
you
think
about
I
didn't
think
about
the
time,
but
really
helped
create
Who
I
am
today.
This
is
a
special
place.
There's
also
another
family
on
the
same
floor
as
me
that
a
guy
around
kid
around
the
same
age
as
I
did
and
he
didn't
live,
but
his
mother
went
to
work
at
the
dana-farber
and
every
time
I'd
go
back
to
the
dienophile,
but
for
a
check
out,
my
mother
would
tell
the
story
about
her
son.
B
But
the
thing
that's
unique
about
all
of
these
experiences
that
the
doctors
and
the
researchers
and
the
nurses
and
the
medical
people
had
never
stopped
constantly
trying
to
find
find
a
cure
for
whatever
it
is
make
sure
the
families
have
good
experiences
here
whenever
they
come
through
the
front
door
and
and
and
and
and
a
lot
of
us
love
you
for
that-
for
what
you
do
well
bless
that
Children's
Hospital
in
Boston.
This
is
the
greatest
Children's
Hospital
in
the
world.
It
doesn't
matter
what
the
rankings
are.
B
Some
years
were
ranked
number
one
by
some
ranking
in
agency
and
ten
years
were
ranked
number
two
by
raking
in
cheese.
But
we
know
in
our
heart
and
in
our
city
that
we're
number
one
one
number
one
Hospital
in
the
world
and
that's
because
of
a
lot
of
great
incredible
people
from
a
nurse
in
1902
the
thought
about.
B
When
the
karmis,
when
the
controversy
happened
around
the
party
garden
out
back,
there
was
a
lot
of
emotion
around
that
and
I
remember
being
a
kid
being
up
and
that
God
and
anytime
that
I
had
a
chance
to
visit
this
hospital.
I.
Take
a
walk
off
that
guy,
because
now
God
didn't
change
from
when
I
was
seven.
B
But
when
it
came
down
to
an
understanding
of
creating
something
even
more
for
the
family's
experience
in
the
sense
of
comforting
the
family
and
comforting
patients
and
allowing
us
to
bill
to
have
individual
rooms
for
families
who
will
come
in,
that's
something
that's
really
important.
My
parents
couldn't
stay
with
me
because
there
was
eight
other
kids
in
the
ward
and
oftentimes
parents.
B
B
B
That's
here
today,
I
want
to
thank
Sandy.
The
president,
who
does
an
amazing
job
here.
I
want
to
thank
you
for
your
friendship.
I
want
to
thank
the
Board
of
Directors
for
your
commitment
to
this
hospital
I.
Want
you
to
continue
to
be
committed
to
this
hospital
and
then
to
the
patients
that
are
here
and
the
families
that
are
here.
I
want
to
thank
you
and
say
that
we're
with
you
and
we
stand
with
you
and
walk
with
you
every
single
day
through
your
journey,
because
it
is
a
journey
to
the
doctors.
B
Thank
you
for
your
incredible
work
to
the
researchers
for
your
incredible
work.
I
want
to
give
a
special
shout
out
to
the
nurses,
because
the
nurses
are
the
ones
who
always
like
when
times
are
tough
and
you're
sick
in
the
bed
and
you're
a
little
kid.
It's
the
nurses
that
really
come
for
you're,
not
sorry
Doc's,
but
it's
the
nurses
that
come
in
come
for
you.
So
I
want
to
thank
the
nurses
as
well
for
comforting
us
and
I.
B
Have
a
I
have
a
official
proclamation
which
I'm
not
going
to
read
the
whole
proclamation,
because
it's
just
there's
better
speakers
coming
behind
me,
but
March
to
2020.
Second
2019
marks
the
hundred
and
fiftieth
year
of
Boston
Children's
mission
to
make
life
better
for
children
and
families
everywhere.
Now
my
J
Walsh
mayor,
the
city
of
Boston,
a
former
patient
of
Children's
Hospital,
do
hereby
proclaim
March
22nd
2019
to
be
Children's
Hospital
day
in
the
city
of
Boston.
C
Am
Fred
Lovejoy
the
associate
position
in
chief
in
the
Department
of
Medicine,
mayor
Walsh,
Sandy,
Fenwick,
marvellous
patients
and
our
incredible
staff
and
administrators
of
Boston
Children's
Hospital?
What
a
grand
day?
This
is
mere
thank
you
for
your
heartfelt
and
inspiring
words,
a
hundred
and
fifty
years
of
serving
children
of
Boston
and
now
sick
children
throughout
the
country
and
for
that
matter
throughout
the
world.
C
What
a
marvelous
history
we
have
so
much
to
be
happy
and
proud
of
I
arrived
here
at
Boston,
Children's
Hospital
as
a
budding
young
resident
50
years
ago.
I
know
when
you
look
at
me
today.
It
looks
like
it's
just
ten
years,
but
caring
for
children
keep
you
very
young
what
a
privilege
to
serve
such
a
grand
institution.
C
D
C
First
house
officers
admitted
in
1882
one
of
the
first
pediatric
nursing
schools
in
the
United
States
established
in
1889,
one
of
the
first
social
service
departments
and
one
of
the
first
physical
therapy
departments,
both
in
the
early
30s
in
the
United
States
and
today,
the
first
sports
medicine
department
and
the
first
and
largest
Otolaryngology
Department
in
the
United
States.
And
what
of
some
firsts
in
childhood
diseases?
C
Robert
gross
surgeon
and
the
first
open-heart
surgery
in
a
child
in
the
united
states
in
1938,
opening
the
possibility
of
operating
on
infants
with
congenital
heart
disease
and
Randolph
bars.
Pediatrician
an
Elizabeth
Lord
psychologist,
discovering
the
ingestion
of
lead
paint
by
children
can
lead
to
mental
retardation
with.
C
C
D
C
Social
workers,
physical
and
occupational
therapists
imagine
what
they
will
be
saying
150
years
from
now,
and
what
amazing
wonders
will
have
been
achieved
so
happy,
Anniversary,
Boston,
Children's,
Hospital
and
now
it's
my
privilege
to
turn
the
microphone
over
to
some
of
our
truly
remarkable
patients
who
will
tell
their
stories.
Thank
you.
D
D
Luckily,
I
learned
from
a
friend
that
Boston
Children's
Hospital
was
trying
a
new
surgical
method
that
could
heal
my
original
ACL
only
a
little
offended
at
how
young
they
thought.
I
was
I.
Looked
it
up
anyway
and
met
with
the
clinical
team
to
see
if
it
was
something
that
was
right
for
me,
the
whole
care
team
from
Brett
Flutie
to
dr.
Martha
Murray
to
doctor
makayley
were
just
fantastic.
As
I
learned
more
about
the
surgery,
I
can
vividly
recall
a
conversation
I
had
with
dr.
Murray.
D
D
D
Not
a
participant
I
felt
like
I
was
the
only
patient
that
they
were
taken
care
of
in
their
busy
clinic
and
I
had
a
speedy
and
fast
recovery
since
the
surgery
I
wrapped
up
my
dissertation
in
Boston
in
my
final
two
years,
but
not
before
I
met
the
woman
who
become
my
wife,
Isabella,
so
no
joke
when
we
first
were
connected,
and
she
learned
my
name,
she
googled
it
and
found
YouTube
video
of
dr.
Murray
and
I
discussing
the
trial.
This
was
the
very
first
time
she
had
heard.
My
voice.
D
Isabella
and
I
are
now
living
on
the
west
coast
and
have
an
active
lifestyle,
and
even
last
year,
I
was
able
to
complete
an
Ironman
70.3
triathlon
in
the
beautiful
and
mountainous
st.
George
Utah
I'm,
very
proud,
to
be
part
of
the
Boston
Children's
Hospital
family
and
to
add
my
story
to
it.
150
years
of
achievements,
thank
you.
F
Hello,
my
name
is
Hayley
Hudgens
and
I've
been
a
patient
here
since
2012
to
share
more
about
my
experience.
I
spent
much
of
my
early
childhood
in
and
out
of
hospitals
due
to
a
congenital
birth
defect
had
many
years
symptoms
free,
but
six
years
ago,
my
senior
year,
my
health
began
to
decline
and
I
had
trouble
eating
and
breathing.
As
referred
to
bch
we're
a
team
of
doctors
were
the
only
one
in
the
world
making
significant
advances
in
the
surgical
approach
to
repairing
esophageal
atresia.
F
With
long
gap,
I
became
the
first
person
to
ever
receive
microvascular
supercharge,
jejunum
I
will
always
remember
the
first
time
dr.
Jennings
gathered
his
team
to
share
with
me
and
my
family
the
details
of
how
they
would
approach
my
treatment
and
care.
It
was
in
a
Skype
video
call
from
my
hotel
room
in
Madrid
Spain,
where
I
was
vacationing
with
family.
F
From
the
start,
I
felt
like
it
was
important
to
everyone
involved
with
my
care
at
BCH
that
I
had
an
active
voice
and
role
in
how
we
move
forward.
Doctors
and
support
staff
made
themselves
readily
available
for
me
to
answer
any
questions
or
concerns.
I
had
during
my
four-month
hospitalization
here
at
BCH,
my
family
and
I
develop
many
meaningful
relationships
with
the
doctors,
nurses,
Child,
Life
specialists,
social
workers
and
others
involved
in
our
care.
F
F
Mann's,
Freddie,
heroic
feat
of
securing
backstage
passes
for
me
to
meet
my
idol,
Taylor
Swift,
before
a
concert
at
following
my
much
anticipated
and
earlier
than
expected
release
from
the
hospital
following
my
lengthy
hospitalization,
the
esophageal
and
airway
team
asked,
if
I'd
be
willing
to
share
my
challenges
and
experiences
with
other
patient
families
who
are
considering
undergoing
the
same
procedure
through
this
opportunity.
I
had
experienced
tremendous
personal
growth
and
satisfaction
and
giving
back
I
also
discovered
my
own
passion
for
improving
the
lives
of
children
born
with
EI.
F
G
Good
morning
my
name
is
sharika
Elliott
and
I'm.
The
mom
of
amis,
a
little
boy
named
T
Andre
C
for
Sarah's.
She
Andriy
began
showing
signs
of
asthma
at
eight
months.
As
he
got
older,
I
noticed
more
frequent
hospital
stays.
It
seemed
like
we
were
Children's
Hospital
every
other
month.
Teondra
is
now
seven.
During
those
years
he
was
hospitalized
at
least
27
times
intubated
eyes
in
his
head
brain
swell
and
which
his
second
severe
attack
was
touch-and-go.
At
this
time.
In
my
mind,
I
was
thought
to
lose
my
son
to
a
disease
that.
G
That
had
plagued
my
family
for
years,
t
Andre
was
fully
diagnosed
with
a
rare
form
of
asthma.
His
doctors
cause
severe
persistent
asthma.
This,
for
my
asthma,
is
most
severe
than
the
normal
form
of
asthma,
because
my
son
has
mutating
cells
the
best
way
for
me
to
explain
this
is
when
T
Andres
have
an
attack
during
the
time
it
cells
are
mutating.
The
cells
tell
the
brain
not
to
react.
G
It's
a
false
alarm
when
in
fact,
tiandra
is
having
an
asthma
attack,
which
also
means
carbon
dioxide
becomes
trapped
in
his
blood,
now
starving
his
blood
of
oxygen.
In
this
event,
this
type
of
asthma,
T
Andre,
has
is
life-threatening
now
I
know
that
may
seems
a
lot
for
someone
so
young,
but
you
don't
know
my
son
he's
a
strong
little
boy.
I.
Need
you
to
understand
that
T
Andre
is
my
inspiration?
No
better
yet
he's
my
hero,
I
watched
my
son
struggle
with
asthma,
since
he
was
eight
months
old.
G
Sorry
and
never
did
he
show
any
type
of
fare
throughout
all
of
this.
Just
little
boy
wakes
up
smiling
every
time
when
he
sees
me
sad,
he
always
said
he
always
tells
me.
Mommy
look
I'm!
Okay,
now
can
I
have
some
Oreos,
please
his
favorite
snack.
Now,
knowing
how
close
to
death,
he
was.
He
smiles,
the
brightest
smiles
and
never
once
showed
fear.
Never
once
gave
up.
He
fought
his
way
back
to
being
a
healthy
to
being
healthy.
G
Again,
sorry,
he
has
taught
me
to
never
ever
give
up
and
to
fight
fair,
but
the
smile
and
always
have
hope.
This
is
why
my
son
is
my
hero.
So
if
we've
been
patients
at
the
community
asthma
initiative,
they
have
shown
me
many
ways
to
keep
my
house
dust
and
mold
free
by
showing
me
which
cleaning
products
to
use
and
ways
to
keep
the
dust
from
coming
through
the
vents
they
provide.
My
son
with
air
purifiers
vacuum
cleaners
and
lots
of
other
helpful
items
like
cheese,
cloths,
Murphy.
G
Also
baby
laundry
detergent
turtleneck
face
mask
to
cover
his
face
during
the
winter,
which
is
a
major
trigger
for
tiandra
plastic
bins,
hyper
allergenic
settings
and
most
important
information
is
to
stop
smoking,
see
Andres
lungs.
Do
matter,
I
want
to
think
his
wonderful
and
amazing
amazing
medical
team.
I,
don't
know
how
I've
gotten
through
all
of
this.
Without
your
help
and
support
without
you,
we
wouldn't
have
been
able
to
celebrate
you
Andres
second
year
by
being
hospital.
Free
T
Andre
is
now
on
the
men's,
bu
basketball
team.
G
He
has
practice
with
the
team
goes
to
their
games
and
his
favorite
hanging
out
his
favorite
hangout
spot.
The
locker
room
see
Andre,
goes
outside
to
play
more
and
has
less
attacks
and
is
able
to
run
play
ride
his
bike
and
play
outside
with
his
friends
instead
of
looking
up
the
window
fill
inside.
Thank
you
for
all
your
help
and
support
to
the
CI
CAI
tea.
You
guys
Rock.
E
My
name
is
Jennifer
salvo
Cheban,
my
husband,
Keith
and
I
came
to
Boston
Children's
Hospital
on
December,
2nd
2015.
We
were
seeking
a
second
opinion
in
the
advanced
fetal
care
center
after
another
major
Boston
hospital
told
us
that
our
daughter,
Charlotte
was
quote
missing
part
of
her
brain
during
my
anatomy
scan
and
then
upon
completing
a
fetal
MRI.
The
next
day
said
that
she
did
have
her
whole
brain,
but
had
congenital
hydrocephalus.
E
We
knew
we
had
to
come
to
the
best
pediatric
hospital
in
the
world,
and
when
you
come
to
the
leading
pediatric
hospital
in
the
world,
you
get
to
have
a
doctor
who
pioneered
a
surgery
for
the
very
thing
the
other
Hospital
claims
Charlotte
had
so
yeah.
We
trusted
him
that
doctor
is
dr.,
Benjamin
Whorf
and
what
he
told
us
that
day
changed
our
lives
forever,
bringing
back
hope
after
it
had
been
taken
away.
Dr.
E
Worf
told
us
that
Charlotte
had
had
a
brain
bleed
in
utero
and
that
had
led
to
enlarged
ventricles,
but
that
she
did
not
have
congenital
hydrocephalus.
The
second
doctor
we
met
at
Boston,
Children's
Hospital,
was
Charlotte's
neurologist
dr.
Christopher
Hewett,
who
quite
possibly
has
answered
three
million
424,000
questions
by
me
since
2015
dr.
Eilat
has
been
with
us.
Since
our
journey
began
at
Boston
Children's
Hospital.
He
has
been
by
her
side
cheering
Charlie
on,
since
she
was
a
fetus,
and
that
is
why
we
feel
comfortable
and
taken
care
of.
E
The
fact
that
our
nurse
Donna
in
the
advanced
fetal
care
center
still
keeps
in
contact
with
us
today
as
a
prime
example
that
my
family
isn't
just
a
number
to
Boston.
Children's
Hospital
were
part
of
the
family.
Being
part
of
that
family
means
you
get
to
see
the
inner
workings
of
a
hospital
that
not
only
provides
stellar
care
for
children,
but
also
as
a
place
where
joy
can
be
found.
The
doctors,
the
nurses,
Child
Life,
Services
volunteers.
They
have
made
the
hospital
stays
and
seemingly
endless
appointments
enjoyable.
E
They
have
created
a
safe,
warm
and
inviting
place
for
both
of
our
daughters,
Charlotte
and
her
older
sister
Alexandra
feel
at
home.
Here
to
the
point
where
Alex
requests
the
activity
rooms
on
the
floor,
as
we
were
just
here
for
a
routine
doctor's
appointment,
yep
they're
that
good,
whether
it's
a
doctor
staying
as
long
as
necessary,
especially
in
the
early
days
after
birth,
to
explain
things
to
us
things
like
bilateral
peri,
Sylvia
and
Polly
micro
diarrhea.
Things
like
that,
where
you
just
don't
understand
or
sitting
in
one
of
those.
E
After
mentioned
activity
rooms
talking
to
a
grandmother
whose
granddaughter
had
been
complaining
of
a
headache
on
a
Friday
and
had
had
emergency
brain
surgery
for
a
tumor
on
a
Monday
and
she
had
survived
and
her
doctors.
Their
grandmother
told
me
that
day
had
made
sure
to
come
by
multiple
times.
A
day
to
talk
to
her
parents
and
the
girl
to
make
sure
she
felt
safe
and
taken
care
of
yes,
this
is
a
place
of
miracles.
E
I
really
do
believe
that
someone
asked
us
how
our
life
has
changed
since
coming
to
Boston
Children's
Hospital,
I'm
gonna
be
brutally
honest
right
now,
and
this
honestly
may
be
hard
for
some
people
to
hear
the
other
hospital
had
told
us
that
her
daughter
would
have
no
quality
of
life,
so
we
were
preparing
for
termination.
So
to
answer
that
question
Boston,
Children's
Hospital
saved
our
daughter's
life.
H
H
My
first
sickle
cell
disease
crisis
on
American
soil
is
what
brought
me
to
Boston
Children's
Hospital.
It
was
November
of
1972
and
I
was
six
years
old,
not
too
long
after
arriving
in
Boston
from
the
warm
climate
of
Jamaica.
My
experience
at
Boston
Children's
was
mostly
positive,
I,
say
mostly
because
the
flip
side
of
that
is
the
pain
and
I
experienced.
H
Whenever
I
experienced
a
crisis,
they
were
always
so
intense
when
I
was
a
child
I,
just
never
I,
never
just
mild,
but
always
had
to
be
off
the
charts
and
beyond
a
ten
on
a
pain
scale,
but
I
would
remember
being
treated
immediately
in
order
to
provide
me
with
much-needed
relief
for
a
kid.
In
my
situation,
it
was
like
magic,
instant
pain
relief.
My
sister
may
not
remember
this,
but
she
once
said
to
me,
as
we
were
in
the
emergency
room
right
after
I
received
my
IV
pain
medication.
H
There
is
no
way
it
works,
that
fast
I,
remember
thinking,
I
am
so
grateful.
It
does.
Children's
Hospital
created
an
inclusive,
loving
and
caring
environment
for
patients
and
families.
I.
Remember
one
particular
office
visit
with
my
hematologist
doctor,
aura
Platt,
when
I
asked.
If
I
could
draw
labs.
Imagine
my
surprise
when
she
said
yes,
I
thought
it
was
the
coolest
thing.
She
was
an
inspiration
throughout
my
childhood
and
entire
life.
She
was
always
honest
with
me
and
helped
me
navigate
my
adolescent
years.
Our
our
relationship
continues
to
this
day
and
I
truly
love
her.
H
My
experience
as
an
inpatient
went
beyond
being
treated
for
my
disease.
The
staff
created
a
safe
and
a
home
away
from
home
because
we
went
we
spent
so
much
time
there.
The
director
of
activities,
Evelyn
Byrd,
helped
create
a
family
with
other
patients
and
their
families.
We
knew
each
other
because
we
were
always
admitted
to
the
same
floor
division
37.
We
cared
for
each
other
and
developed
as
a
family
and
were
there
to
comfort
when
we
experienced
a
loss
since
coming
to
Boston
Children's
Hospital.
H
H
She
knew
that
moving
to
this
country
would
mean
that
we
would
have
a
better
future
and
I
am
forever
grateful
to
her.
She
had
a
vision
and,
as
it
turns
out,
Hydrox
areia
was
a
part
of
that
vision.
For
me,
I
was
introduced
to
the
drug
in
1982
at
age.
17
I
needed
a
dramatic
change
in
my
life,
as
my
last
couple
of
years
in
high
school
were
spent
in
the
hospital
or
at
home
as
I
recovered.
From
my
most
recent
hospitalizations,
my
mom
and
I
weigh
the
risk,
but
the
benefits
were
far
greater.
H
I
wanted
to
be
like
my
siblings,
normal
and
contributing
members
of
society,
as
were
our
parents,
so
it
wasn't
easy
decision
to
enter
the
trial.
I
had
more
to
gain
than
I
had
to
lose
being
the
first
in
the
world
with
sickle-cell
disease
to
receive
hydroxy
RIA
never
entered
our
minds
once
that
was
made
clear
to
me.
It
blew
me
away.
I
wish
my
mom
was
here.
I
Good
morning
my
name
is
Jennifer
Miller
and
in
2001,
I
was
about
18
weeks
pregnant
with
my
second
child.
I
was
feeling
much
better
than
I
had
with
my
first
pregnancy,
and
my
husband,
Henry
and
I
went
to
the
ultrasound
with
complete
confidence.
It
was
a
boy
we
learned
a
boy
we
had
already
named
Jack,
but
Jack
wasn't
completely
cooperative
during
the
ultrasound.
I
They
couldn't
quite
see
his
heart
and
they
couldn't
quite
tell
us
that
his
heart
was
developing
normally,
so
they
scheduled
a
level
2
ultrasound
and
we
remained
confident
you
can
tell
when
something
goes
badly
wrong
at
a
level.
2
ultrasound
the
atmosphere
in
the
room,
changes
people
hurry
in
and
out.
They
look
at
you
differently
in
that
small
ultrasound,
room,
Henry
and
I
were
told
that
Jack
had
a
very
serious
and
potentially
fatal
heart
defect.
I
Hypoplastic
left
heart
syndrome
over
the
remaining
weeks
of
the
pregnancy
we
were
told,
Jack's
narrowed
aortic
valve,
would
cause
his
left
ventricle
to
deteriorate
to
the
point
where
he
would
be
born
with
essentially
half
a
heart.
When
parents
are
given
a
devastating
diagnosis,
they
fear
that
everything
normal
about
their
lives
has
been
lost,
a
normal
life
for
their
child
and
their
family
filled
with
all
the
usual
experiences
and
joys.
But
with
that
diagnosis,
suddenly
you
imagine
the
years
stretched
out
in
front
of
you
filled
with
surgeries
medicines
and
doctors,
appointments
and
maybe
worse.
I
I
The
increased
blood
flow
across
the
valve
would
allow
his
heart
to
develop
normally,
but
it
had
never
been
done
before,
and
the
results
of
the
previous
attempts
were
not
encouraging.
As
the
front
page
of
the
New
York
Times
would
later
report.
We
chose
the
science
fiction
option.
Despite
all
the
unknowns
and
the
staggering
technical
challenges
it
made
sense
to
us
and
it
provided
the
best
chance
for
Jack
and
the
whole
family
to
recapture
the
normal
life
we
feared
was
lost
as
the
New
York
Times
also
reported.
The
procedure
was
a
science
fiction.
I
Success
Jack
was
born
at
about
33
weeks
with
both
ventricles
intact.
They
pronounced
him
robust
and
with
that
normal
was
again
a
possibility.
Flash-Forward
17
years
jack
is
a
junior
in
high
school.
Looking
forward
to
high
to
college,
he
drives
he's
been
active,
his
entire
life,
he
boxes,
he
bikes,
he
skateboards.
He
surfs
he's
played
competitive
sports
since
he
could
dribble
and
he
now
starts
for
his
high
school
varsity
baseball
team.
None
of
that.
I
None
of
that
gloriously
normal
teenage
boy
existence
would
have
been
possible
if
we
hadn't
walked
through
these
doors
and
no
part
of
our
families,
totally
normal
life,
where
most
of
our
worries
are
mundane
and
our
joys
are.
Many
would
have
been
possible
without
that
science
fiction
success
and
we
are
just
one
story,
just
one
of
countless
successes
that
this
great
institution
has
seen,
all
of
which
have
brought
the
possibility
of
normal
back
to
families
badly
in
need
of
it.
A
Boy
yeah
that
I
don't
know
about
you,
but
it
takes
my
breath
away
to
listen
to
your
stories
and,
first
of
all,
thank
you.
Thank
you
for
your
willingness
to
share
your
stories.
Thank
you
for
your
faith
in
Boston,
Children's
and
our
people,
and
we're
so
glad
to
hear
that
so
many
of
these
stories
have
turned
out
so
beautifully.
Thank
you.
A
There's
always
two
sides
to
a
story
and
I'm
really
thrilled
that
some
of
the
very
important
people
who
have
been
the
other
side
of
this
story
are
here
and
I'd
like
to
ask
in
addition
to
the
ones
that
have
already
been
asked
to
stand.
If
you
could
just
hold
your
applause,
I
would
like
to
just
have
them
all.
If
they're
here,
please
stand
dr.
rusty
Jennings
at
the
surgeon
who
did
the
esophageal
atresia
doctor
or
a
plaque
that
was
mentioned
as
the
hematologist,
who
was
very
involved
in
care.
Dr.
A
David,
Nathan
I,
don't
know
if
David's
here,
but
it
was
David
who
suggested
the
Halle
hydro
hydroxyurea
for
sickle
cell
dr.
Martha
Murray
from
our
Barre
program,
dr.
Lisle
McCauley,
who
actually
did
the
surgery
on
Corey,
dr.
Chris,
Christopher
Eliot,
who
was
involved
right
here
and
as
a
Nirali,
neurology,
neonatologist
and
dr.
sherry,
neither
saw
Elizabeth
woods
and
nurse
practitioner
Linda
Haynes
in
the
asthma
initiative.
Thank
you
all.
A
So
obviously
there
have
been
many
people
who've
been
involved
in
not
only
planning
this
day
and
I'd
like
to
do
a
shout
out
to
the
committee
and
the
people
who
have
made
this
day
possible
and
we've
got
lots
more
going
on
for
the
whole
rest
of
the
year.
We're
gonna
make
this
a
today
a
rolling
rally
and
get
through
the
whole
rest
of
the
hospital
going
to
literally
all
our
satellites
and
all
our
departments,
but
I
just
hope.
A
You'll
get
a
chance
also
to
look
at
the
fabulous
cakes
that
we
have
here,
our
original
site
on
Rutland
Avenue
in
Boston.
That
was
really
the
original
site
in
1869
our
Honeywell
building.
That
was
the
first
location
here
on
Longwood
in
1914
and
are
soon
to
be
completed.
Hale
building
and
you
know,
obviously
we
don't
have
our
whole
campus,
but
it's
an
incredible
beautiful
set
of
cakes
that
commemorate
this
wonderful
history.
A
But
as
we
look
back-
and
we
say
how
do
we
show
tribute
to
the
people
who
have
come
before
us
and
all
the
people
who
have
made
the
most
amazing
contributions
to
the
patients
and
Families
I
just
want
to
talk
about
our
future
for
just
one
moment,
because
this
place
really
truly
is
never
satisfied.
It
is
a
place
that
is
constantly
looking
for
what
we
can
do
next
for
the
patients
and
families.
We're
never
satisfied
that
the
quality
of
life
for
children
is
what
it
could
be.
A
We're
never
satisfied
that
we
have
treatments
and
drugs
and
devices
and
cures,
and
we
are
right
on
the
edge
of
some
of
those
right
now
cures
that
we
hope
will
truly
change
the
lives
of
children
not
just
today
but
in
the
future,
and
so
thank
you
to
all
of
you.
Thank
you
for
not
only
what
you've
contributed
to
the
last
150
years,
but
also
to
the
next
hundred
and
50,
because,
as
the
mayor
said,
I
don't
think
any
of
us
can
imagine
or
can-can
even
dream
of
what
next
hundred
and
fifty
years
will
look
like.